John Stiffler

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Welcome

In November 2012, John Stiffler, "the one man band," was diagnosed with a rare auto immune disease called Chronic Inflammatory Demylinating Polyneuropathy (CIDP). This site is meant to keep John's family and friends up to date with his condition as well as to provide a place where loved ones can show support, whether through posts of love and encouragement or monetary donations via a local church. Prior to being diagnosed, John worked as an Occupational Therapist for several facilities and was an active member in his community as well as a popular local musician, winning people over with his comedic approach. Now reliant on leg braces and a cane for navigation, John's rapidly progressing disease has impaired every aspect of his life. Following multiple tests and unsuccessful treatments, John was accepted at Northwestern Memorial Hospital in Chicago, IL for a stem cell transplant that is accompanied by astronomical costs. Your support is greatly appreciated.

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Jes Klingebiel , 5/12/2014 1:26:48 AM UTC

Yay!!! John is home!! What a great Mother's Day gift!!! The kids were waiting by the door. :)  He is doing great! His balance and mobility with leg braces has improved tremendously !  He went from balancing for 15 seconds to over 3 minutes when he left Chicago Rehab. And they had him walking close to a mile without a cane or walker! He hopes to now work on strengthening without the leg braces but is so thankful for where he is. He will start at Healthsouth in Altoona this week and we hope that he just continues to improve. We love you all and thank you for all the prayers. And if you want to email john...He'd love to hear from you. His email is johnstiffler62@hotmail.com. :)

Jes Klingebiel , 4/18/2014 10:34:20 PM UTC

So excited to report that John walked independently at rehab today!!! And it was so wonderful that we were in Chicago to see it!  The kids surprised him by knocking on his Chicago door last night and what a wonderful surprise it was!!!  :)  John gets  stronger everyday!  His discharge date from RIC is May 9th and we can't wait for him to get home. I have tried to post videos on here by unfortunately have not been successful but please feel free to find me on Facebook under "Cheer Boss" ( I know...goofy name lol).  We also thank God for all our blessings and thank all of those who supported and/or attended the benefit for John in Summerhill. We can't thank you enough and we love all of you!!!

Jes Klingebiel , 4/3/2014 2:49:47 PM UTC

We are thankful John is now at the Rehab Institute of Chicago. He has had good days and bad days but more good than bad.  Praise God! We had the BEST WEEKEND EVER when John surprised the kids and flew home!  The Hoops for Hope basketball tournament, headed by Randy Seymour, in honor of John was also held and John surprised everyone by showing up :). (see pics).   We cant thank all 60 volunteers and all the sponsors and donators enough!  He is working hard in PT and OT this week and will be in Chicago for at least a couple weeks. He continues to walk with a walker but is showing small gains in rehab. We are blessed! Love you all! #prayforjohn #bestillandknowthatiamGod

 

Kir

Jes Klingebiel , 3/21/2014 1:20:34 AM UTC

We were brought to tears today! In rehab, John was able to push his feet up and down. This is the first time in over a year for him to move his feet independently. We praise OUR AWESOME GOD for this blessing!!!! His nurse practitioner believes this is the work of the transplant!  If all goes as planned and John continues to improve, he will be given more chemo which will kill more of the bad cells attacking his system (without killing the new stem cells). We can't thank you all enough for continuing to pray! "Be Still and Know tThat I Am God" Psalm 46:10

Love Kir

Jes Klingebiel , 3/18/2014 11:37:30 PM UTC
Today we have had some laughs and some cries....but how God continues to bless us. First, John is completely off of his oxygen...thank you Lord. His blood pressure is within normal range and he has walked the halls 5 times today His spirits are a bit elevated this evening after Amy, his nurse practioner and our wonderful nurse, Edra gave him a "pep talk." I know this is God sending what is needed at the perfect time and I praise him for that. The best part of the day ca...me when John was told by Dr. Burt that if he continues to improve, he may be able to get more doses of chemo that he missed when the plan had to be changed. Yay! And I know I've said it before but we can't thank you enough. Your comments, support, messages, prayers...everything has helped us more than you'll ever know. GOD IS GOOD ALL THE TIME. ‪#‎prayforjohn‬ ‪#‎weareonGodsschedule‬ ‪#‎FROG
-Kir
Jes Klingebiel , 3/18/2014 3:43:36 PM UTC

So today every ounce of positive spirit was sucked out of me for a time. I was so angry and so, so sad for John because he has been through so much. After we were told we had to stop chemo treatments and they weren't sure how effective the transplant would be, I had to leave the hospital, turn my phone off and on the way out, I felt like telling some girl that complained about a broken nail to shut up. Boy was Satan working on me! With tears streaming I said Please God.,, calm us down and help me make sense of this. And let me share what He placed on my heart (sorry writing on here makes me feel better as I once again ask for your prayers and you all so kindly pray and support us) 1. This HAD to be GOD intervening and changing the plan bc maybe John wouldn't have survived all that chemo and medication 2. Maybe this is John's way to contribute to this research and help someone else down the road that suffers from pneumonia during this schedule and 3. TO STOP AND BE STILL. Let God do his thing IN HIS TIMING and not let Satan win! I will not waiver... I will focus on what we know ...that God has opened so many doors and made things happen a certain way today. God had my dad here and my mom with our kids today and that got everyone thru the day with someone supporting someone else. God gave Ayden friends that surrounded him and hugged him when he broke down today. God had so many nurses encourage us at different timed that this is going to work! And God has brought all of you to us and blessed us so much with your support. Friends I am sorry for being so needy but please continue to pray. my prayer request is specific tonight : please pray our God touches John and lifts him up. He is improving physically with pneumonia but is very down. I can't thank you enough. We love you all. "Be Still and know That I Am GOD" Psalm 46:10 ‪#‎prayforjohn

-Kir

Jes Klingebiel , 3/17/2014 12:12:02 AM UTC

Sorry I have not posted on here for a while...it has been a week!  John had his pic line put in on Wednesday with success!  He also had three great days of chemo with very tolerable side effects!  We are so thankful!  Last night John started to feel sick and started coughing and experiencing bad pain across his back.  After tests and blook work, he was diagnosed with pneumonia in his right lung.  He suffered from fever, chills, and sweats throughout the day.   His breathing was labored this morning and his blood pressure dropped at one point to 71/50 somthing.  His pulse ox level was also below 90 without oxygen, so he had to have oxygen for breathing.  Chemo was stopped.  As the day progressed, his blood pressure would not elevate, thus an ICU team evaluted him further.  Thankfully, he did not require being moved to ICU, however they are closely monitoring him as he is maxed out on the oxygen amount allowed for this unit.  So we pray that John can overcome this set-back and be healed of the pneumonia in order to continue on the schedule for tranplant.  We have been so blessed with SO MANY prayers and support from all of you!  And the medical team here at Northwestern is absolutely amazing.  We thank our God for the many blessings he has given us and pray for healing in His timing.  

Jes Klingebiel , 3/8/2014 7:53:27 PM UTC

 Had a great visit with John, the kids, and my parents. Kids are flying back today with my dad. Tough to say "see you later alligators" but God has helped us get this far we are thankful! Tough week ahead with pic line being put in on Wedne...sday and 6 days of intense chemo for transplant starting on Thursday. So we appreciate your continued prayers. Can't thank you all enough for all the support! "Be Still and Know that I am God" Psalm 46:10.

-Kir

Jes Klingebiel , 3/2/2014 2:32:10 AM UTC

My parents have been with John this week and his two nephews, Jason and Chad, arrived today.  We are so thankful John has been able to have these folks visit and stay with him. John is having some headaches following the stem cell extraction so praying those resolve.  He did not have to go back yesterday to have more stem cells collected because they were able to get more than enough on Thursday, Praise the Lord! In typical John fashion, he is telling everyone he is "Superhuman" b/c they collected more than expected.  haha  So, now he waits until March 12th where they will begin the actual stem cell transplant.  The kids and I are flying out on Wednesday and we cannot wait!  I will then stay with John until he comes home. -Kir

Gabriella wanted to write a message to everyone:

hi i just wanted to tell everybody this that throghout this life is has bin fun and funny laughing and i wanted to say that i couldn't ask for better parents thank you and i an so sorry u had to go throw this and i wanted to  say good luck thank you all  and my dad is so thankful         love you all and praise the lord o god in heaven think about my dad and thank you Gabriella Stiffler

Jes Klingebiel , 2/27/2014 1:16:20 PM UTC

I have had so many requests for John's address in Chicago.  Here it is:

Residence Inn - Room 1115

Attn: John Stiffler

201 E. Walton Place

Chicago, IL 60611

 

God bless you all and thank you for your continued prayers!!!

-Kir

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