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Love for Luke

Luke was diagnosed with stage 4 alveolar rhabdomyosarcoma on August 19, 2016. He started treatment on August 22. We appreciate all of your support. read about page

Latest journal entry

Day 148...

Luke is on a scheduled break in chemo. He's finished his 17th week of the protocol. Week 18 (this week) is an off week. Week 19 is evaluation week. He'll have an MRI, a CT scan, a PET scan and a bone marrow biopsy next week. He's due to start radiation in week 20. Please continue to keep him in your thoughts and prayers as we face this next set of scans.

I went to watch Teddy play volleyball yesterday while Paul took Luke to the doctor for counts. It was strange for me not to be there for an appointment, but great to see Teddy play. Luke said they spent about 45 minutes with the doctor. I continue to be impressed with the time the doctors give to us. Another of his oncologists stopped by the hospital room on Thursday afternoon. He had already seen Luke during rounds that morning, but came by to chat for a bit. They mostly talked about food and restaurants.

Luke is feeling well and planning to have lots of good food and fun during his little break. I'm hoping he'll put a little weight back on. He's near his lows, but has been able to maintain this weight, so that's good. He's been loving the borrowed Vitamix and has been getting extra calories from smoothies and hot cocoa. Here's a tip for any Vitamix owners out there -- dark chocolate plus milk on the soup setting makes really good hot cocoa! He's been using whole milk for a nice calorie and fat boost.

Speaking of the Vitamix, Luke got an amazing early birthday gift today. Yes, his own Vitamix from a group of amazing neighbors and friends. Luke isn't speechless very often, but he was when he realized what was in the package. I knew it was coming, but I'm still pretty speechless myself. If anyone is looking for a nearly new Ninja NJ600, let me know :).

Thank you all again for your thoughts, prayers, love and support. The outpouring of love for our sweet boy is so special.

Amanda
#lukestrong