Thanks to all for the support, including the many cards, letters, emails, texts, phone calls, flowers, food, (delicious dinners) gifts and time spent with us.
Many people have expressed the desire to contribute to a charity in honor of Rick. I am finally meeting with Rick's doctors on 3/17/14 to establish a fund in Rick's name to allow them to make progress in the research and treatment of cardio-respiratory failure. If you are interested in supporting Rick's memory medically, this would be the best place. I will post after this is set up and I have more information.
In honor of Rick's memory, please consider being an organ donor and spread the word that organ donation saves lives.
The outpouring of support was incredible on Saturday. Thank you for celebrating Rick and our family.
Michael Luther mentioned putting a book together for us with memories of Rick. The following is the email address to send thoughts to: Memoriesofrickbartlett@gmail.com Additionally, all are welcome to continue to post on this site.
I am gathering ideas on how to best honor Rick's battle with end stage lung disease. Current efforts by Rick's phenomenal doctors are focused on research and treatment of cardio-respiratory failure. I am interested in contributing to such efforts. I will post in the near future with more information.
Please consider being an organ donor today.
After a three year struggle, Rick lost his battle with lung disease on Friday night, surrounded by his wife, his parents, and his sister. His courage, determination, and fortitude were not able to overcome this insidious disease. He fought incredibly hard to the end and the doctors did everything they possibly could, but the lungs he had waited for so bravely and patiently did not arrive.
Rick was very lucky to have a large circle of family and friends and he very much appreciated all of your thoughts, prayers, and encouragement along the way.
Although Rick was not able to receive his transplant, we are certain that he would appreciate your support for organ donation to help save others.
The funeral service will be held on Saturday morning, February 1 at 11:00 am
Church of the Resurrection
910 Boston Post Road
Rye, NY 10580
A memorial reception will follow
Westchester Country Club
99 Biltmore Avenue
Rye, NY 10580
Thank you all for your kind words and well wishes. Rick remains in the ICU at NY Presbyterian and continues his fight every day. I am at the hospital every day along with Rick's parents and Rick's sister and my brothers. Please continue to keep Rick in your thoughts.
Rick remains in the ICU at NY Presbyterian. On 1/1, the doctors put Rick on ECMO (extracorporeal membrane oxygenation) as a bridge to lung transplant. The decision to start ECMO was due to respiratory failure and right heart failure. ECMO is being used until suitable donor lungs are available to Rick. He is fighting everyday and his team of doctors are the absolute best here at Columbia. We have great confidence in them all as we wait for healthy lungs. Please continue to keep Rick in your thoughts.
Thank you all for your well wishes. Rick is back at NY Presbyterian as he waits for an offer of healthy lungs. He is in ICU and he cannot receive visitors; only immediate family is allowed. Please understand that he reads all messages and feels your love and support. His rest is very important as he continues to prepare for surgery to receive healthy lungs! Thank you all for sending emails instead of texts and calls, it has been a huge help in allowing him to rest when there is quiet time at the hospital. Lots of love, Loring
Since Farah's post earlier today (and after admission to NY Presbyterian/Columbia this morning), Rick received a call from UPenn in Philadelphia, with a double lung offer. We travelled by ambulance to Penn and arrived here around 3 pm. We waited for news of the condition of the donor's lungs and at 7:45 pm we received a call that the condition of the donor's lungs was unacceptable and therefore transplantation was cancelled.
Rick's parents and sister, Amy and my brother, Will, joined us here tonight. Rick is now getting some rest in the hospital. Rick and I keep our ringers on all night in case the transplant team calls so please use email rather than phone calls or texts.
Thank you so much for your support and well wishes. We are confident that he will receive another lung offer soon.
Hello everyone. My name is Farah Roessner and I am a friend of Loring and Rick. Loring and Rick have asked me to let you know that Rick was admitted to Columbia this morning so that doctors can better monitor his lungs and heart and support him with more oxygen. Everyone remains optimistic that new lungs will come soon. We will post updates whenever there is anything new to report. Please check this site for any updates, as they will not be able to respond to emails and calls at the moment.
Loring and I would like to say thank you for all the love and support. We really appreciate it. We've had a busy month. I had update visits at both Columbia Presbyterian in NYC and UPenn in Philadelphia. I go on a regular basis to test my lung status. As we expected, my lung function continues to deteriorate. However, the pace of decline has picked up since earlier in the year. My lung function is now down to a point where I need an increasing amount of oxygen on a 24/7 basis. As a result, I don't have much mobility left and I need to take O2 tanks with me if I leave the house. The good news in this deterioration is that it improves my position on the wait list in both regions. Lungs, unlike some organs, are allocated based on how sick you are. So in this case "bad" news on my lung function is "good" news for my lung allocation score.
Needless to say, our level of anxiety has increased as result of this uncertainty. We do remain optimistic that the call is coming soon and my recent movement up the list should help our odds.
As many of you know, my favorite phrase is "Keep Calm and Carry on." That is how I approach each day and it seems to be very appropriate during this difficult time.
Clearly more to come and as events unfold we will be posting more regularly.
Thank you again for all of your support.
Rick is doing well, all things considered. He continued to lose lung function through the summer and in August began using oxygen full time. As a result, he is less active than he used to be. He was placed on the active transplant waiting list on October 9, 2013 at Columbia Presbyterian in NYC and at UPenn in Philadelphia. We hope that being on two lists will improve the odds that he will get lungs sooner. Being on the active list also means we could get the call at anytime, day or night. So we are ready.
We will use this site to update everyone as time passes.
Thank you for all of your support, we appreciate it very much.