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Aaron is our 11 year old son who is fighting an illness called Myelodysplastic Syndrome (MDS). MDS is a haematological disorder that results in his bone marrow failing t[...] read more

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Summer is in full swing!

It truly feels like a new season for our home.  The storm appears to be settling and we are very very thankful.  

Aaron is doing well.  A month ago, his bone marrow biopsy results showed a little original (old) bone marrow (though at this stage we were hoping there would be no original marrow) and no signs of disease.  As a result, three weeks ago Aaron’s central line was removed marking the end of treatment and the most critical period of recovery.  Even better, we found out yesterday that his more recent blood work results show 100% donor (new)  cells!  This is a wonderful answer to prayer.

Full recovery will take up to two years and we will be especially cautious for the next few months until Aaron is re-immunized (all the regular immunization that he had as a child needs to be redone given the transplant).  Nonetheless, Aaron’s blood counts are coming in beautifully and even though he needs to be cautious, he can now join the crowds.

Aaron’s bad foot is clear of all foot sores. In fact, all his skin is perfectly clear. His foot now recovers from the strain it endured for those many months of walking on his heel.  He sometimes hobbles, however he never complains nor slows down!

Visits to the hospital clinic will now stretch out to being a month apart.  As the doctors monitor, we pray for continued protection of Aaron’s organs, from catching anything significant while his immunity matures, and from relapse.  

Wow!  We are so glad to share this report. 

We are overwhelmingly delighted that at 6 months our boy is diving into summer.  With restrictions lifted, he took his first long awaited plunge in the water last week… as the boat whipped the tube out of the wake and he was thrown in the lake!?!  It was quite comical as he bobbed up, at first with a look of ‘are we sure this is okay’, and then a huge grin - the relief of having the freedom to just enjoy.      

As a family, we too are feeling a great sense of relief and readiness to re-engage in everyday life.  There is no doubt we are somewhat battered and worn from this storm.  What a strange mix of thankfulness as we watch our eleven year old enjoy many of his favourite activities, but also a feeling of frailty as we stand back up on shaky legs.  We are doing well, but not because our faith has kept us from having problems or from feeling their full weight.  Rather, we are doing well because we have struggled with the questions of ‘why’, in our weakness pleaded ‘enough’, and yet in the midst of our struggle still found hope and rest in God’s goodness and purpose; our faith has been tested and proven. 

Aaron’s name means ‘strong and exalted’.  On giving him this name, our prayer was that he would find his strength in the Lord, not in himself.  In theme, Aaron has had a verse from the Bible, Isaiah 40:31, beside his bed since he was a toddler.  The verse itself is part of a conversation - Isaiah asks to know that God is aware of his plight; to know God’s personal concern and care.  In response, God makes the promise that ‘they who wait for the Lord will renew their strength; they will mount up with wings like eagles; they will run and not be weary; they will walk and not faint’.  

Our prayer continues to be - for Aaron, for us as a family and for all of you - that when the storms come we will remain anchored in Christ and receive His strength for each new day.

Lord willing, this will be our last post.  Thank you for tracking with us, for your support and your prayers.  

Much love,

the Dias fam

 

pictures:

1. Tubing last weekend

2. The verse from Isaiah 40:31 on Aaron's bedside table

3. Years ago Aaron started calling Isaiah 40:31 ‘his’ verse and made a painting to represent the eagle’s flight

4. Aaron’s sermon notes the day he started the heavy chemo

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