I have received a few reminders that I should post a quick update :) Thanks for checking in on us!
Aaron is doing well in many ways and in many ways he has a long way to go. He is growing in strength and energy. His new bone marrow has grafted and is steadily increasing in its production of healthy blood – yay! Unfortunately, however, other testing shows that Aaron is at risk of relapse - because the old bone marrow has not been completely eliminated. To reduce this risk the doctors make weekly adjustments to his medications with the hope this will address the issue. It will be several weeks before they know if this is working. This set-back has resulted in ongoing nausea and skin issues. His foot sores are starting to improve and we're very hopeful that sooner than later he will be able to walk properly.
Since his discharge Aaron has adjusted to days at home, enjoying being with family and receiving visits from friends. Typically he’s back to Sick Kids once a week with another weekly visit from a home care nurse. Starting last week a teacher comes to our house for a few hours each week helping Aaron to catch up on his grade 6 year. He continues to stay away from large crowds as we wait for his new immunity to mature. With this amazing warm weather, Aaron is outside for short spurts of basketball in the driveway and bike rides to the corner store!
At times the length of recovery as well as the restrictions on his activities can be overwhelming and Aaron can struggle to remain motivated. Thank you for all your efforts to keep him encouraged. His school recently had a jersey day in show of support. The students wore their favourite sports jersey (instead of their uniform) and brought a loonie or toonie to raise money for Sickkids. Way to go St. Bernadette for collecting over $800!
Though we are all a bit weary, we are thankful for how well Aaron is doing right now. Thank you for praying. Know that Aaron’s new immunity is coming in strong. He has been spared many potential risks, we have been cared for above and beyond what we could have imagined, and Rachel has made a quick and full recovery. We are not only thankful for the things that are going well, we’re also thankful for the miracles that can be numbered in the midst of the trial: strength to face the day, fears overcome, joy despite circumstances, a richness in relationship that is unrealized when things are comfortable, refined character, comfort received that can now be given, perspective, an eternal hope that brings assurance that all will be well no matter the outcome, and above all the nearness of a loving God. For these many blessings we are so thankful. Even more, in numbering these graces our faith is strengthened to face what is yet ahead.
We pray for these same graces for each of you. Happy Easter!
Jesus invites, "Come to me, all you who are weary and burdened, and I will give you rest" (Matthew 11:28).