I am finally writing from the comfort of home! 😁 I can't articulate the pure joy we felt when I drove away from the hospital with Andy, and again when we walked inside our home. 🏠The two flights of stairs have been great all-day physical therapy for him, and hoisting the wheelchair in and out of my vehicle has been a constant workout for me! ;)
His discharge was delayed due to a snafu with insurance - they wouldn't cover the prescribed seizure rescue medication and another anti-seizure maintenance medication, and the hospital couldn't release us without us having them in-hand. Long story short, the insurance company denied the appeals numerous times, so over the course of several days, I made an arrangement directly with the manufacturers to pay out-of-pocket in order to get Andy discharged. Those last few inpatient days were really tough on him because he had been so excited to head home. I hope to make progress with the insurance company over the next 30 days, or have the neuro team come up with an alternative medication regimen that the insurance company will cover. In the meantime, we have plenty to keep us busy every day with all the PT, OT, speech and neuro appointments that have already filled the calendar for the month of March!
I am delighted to report that I am still noticing improvements in his strength, coordination, and speech and eating every day. He is excited to visit his advisory class at school tomorrow and see his classmates. He was bored with me after one day at home, which I think is a great sign - he is really motivated to get back to school and his routine! 😉 I am not sure how we will balance all the appointments with school considering what I am learning about his brain injury and how it affected his cognitive skills, endurance and fatigue, but I know he has a great support team at school and we will take it one day at a time.
I would like to take a moment to thank you again for all your support and encouragement during this crazy journey. Andy has been reading and re-reading the comments posted here, the cheer cards sent to the hospital, your texts, and the notes and cards sent to our home. Now that we are home, I am finally reading through everything sent directly to our home and through Tandy, and I am humbled by your kindness and generosity. 🙇🏼♀️ Thank you to those who helped get Giovanni where he needed to go (Dara, Beth & Brian, you are angels!) and kept him well-fed so I could stay at the hospital with Andy. Thank you to my dear aunties for taking time out of your busy lives to spend with Giovanni (and me!). Thank you to Tandy, Alan and Chris, for taking over for me so I could focus fully on taking care of my family. Thank you to all my dear friends and colleagues in DN, MP, HQ, LSS, D&I and every other division for being our extended nationwide family and support network. Our heartfelt appreciation goes out to all our family, friends, neighbors, Stapleton MOPS, colleagues, classmates and your networks for your prayers, positivity and encouragement every step of the way. I couldn't have gotten through this without you. The neuro team at Children's is still astounded by Andy's miraculous recovery. I know it's all because of you and this community of love and support and I am forever grateful to you. ❤️🙏🏼🤗
P.S. Giovanni's high school swim season is underway and he has his first meet this Friday. Please send a cheer his way! 🏊🏼👏🏼 Also, he is still waiting to hear about NSLI overseas program - hopefully he will have a response late this month or next. 🤞🏼
P.S.2. Stay tuned for occasional updates as Andy works through the outpatient rehab program.
P.S.3. I know I mentioned I would post more pictures, and I planned to post a series of photos that showed Andy in the various stages of the hospitalization to demonstrate his amazing progress. It was too painful for him to see, so we decided together that I wouldn't post anything from the hospital stay until he feels ready. Instead, I will take pictures from this point forward and post them as he gives me permission. 😊