Share. Connect. Love.

Posted 2019-05-12T23:59:00Z

Happy Mother’s Day! 🥰 🌹🤱🏼

I hope all the moms, grandmas, aunts, sisters, godmothers, caretakers, BFFs, teachers, mentors, girlfriends... ALL the ladies are being treated like the Super Moms that you are! 🦸🏻‍♀️ I realize more than ever that it truly takes a village to raise kids, so even if you are not a biological parent, by being a part of a child’s life or supporting the family in any way, you deserve to be celebrated! 🥳💆🏻‍♀️ I am grateful and blessed to be part of this village with you.[...]

Posted 2019-03-06T22:57:00Z

Home sweet home! 😃🙌🏼🎊

I am finally writing from the comfort of home! 😁 I can't articulate the pure joy we felt when I drove away from the hospital with Andy, and again when we walked inside our home. 🏠The two flights of stairs have been great all-day physical therapy for him, and hoisting the wheelchair in and out of my vehicle has been a constant workout for me! ;)[...]

Posted 2019-02-24T15:50:00Z

Heading home at the end of the week! 🤞🏼🙏🏼😁

Sunny Sunday morning greetings! ☀️ Today is the only day Andy doesn’t have therapy starting at 7, so I thought I would send a quick update while he snoozes. I realized this morning that he has about 40 hours a week of therapy plus about 15-20 hours of practice / homework (spread over all seven days) so he is doing more than the regular full-time schedule of an adult. No wonder he’s so tired! 😴 [...]

Posted 2019-02-01T01:31:00Z

Good news: Positive baby steps... 👍🏼

Hi everyone! I hope you have all managed to stay warm and healthy despite the polar vortex 🥶 Thank you for your continued support, encouragement and patience during this intense and stressful time. I believe the worst is over as far as Andy’s critical situation, and I am grateful to you for all the prayers and messages of support that keep Andy fighting. Rather than dwell on the setbacks and moments of crisis, I would love to share the positives. We can all use some good news, right? ☺️[...]

Posted 2019-01-26T17:51:46Z

DRESS + ICU

Good morning, everyone. I have a quick update for you: Andy developed a new complication called Drug Reaction with Eosinophilia and Systemic Symptoms (DRESS), and his liver and other organs are under duress, so we are back to the ICU. Basically, he developed a highly negative response to the anti-seizure medication that has kept his seizures under control. A new medication is on-board and he will be closely monitored during this critical period.[...]