Share. Connect. Love.


This site was created to keep friends and family updated about Bryan's condition. Bryan was diagnosed with Hepatosplenic T-cell Lymphoma--A rare and aggressive cancer. He[...] read more

Latest journal entry

Posted 2015-01-08T04:57:00Z

Bryan's Story

 Bryan's condition began in August 2014 with persistent stomach pain and fullness after every meal which eventually resulted in weight loss; this started a series of doctor visits and ultimately hospitalization. The initial doctor appointment was followed by several tests that only showed a slightly enlarged spleen but nothing to be of any concern. Subsequently, Bryan was then referred to a GI specialist who upon physical examination found a enlarged spleen along with blood test results showing a low blood platelet count. At this point, he was referred to a Hematologist who ordered more blood work and a PET scan. Bryan's blood work came back showing that his red and white blood cells were low resulting in anemia and his platelet count continued to decrease as well. The PET scan results showed a very enlarged spleen and also indicated activity in his bone marrow; a bone marrow biopsy was ordered and eventually it came back showing normal results. Meanwhile, during this time Bryan was admitted to the hospital due to a 104 temperature, body aches, a persistent cough, and extreme fatigue. Upon being admitted into the hospital, Bryan found out that his blood counts were so low he had to receive a blood transfusion and was put on several antibiotics because his immune system was compromised.  After finding out Bryan's spleen was so enlarged due to the fact that it was sequestering his blood platelets, numerous tests were ordered to find out the underlying problem. Since test after test came back normal (including negative results for various cancers) giving no indication of what the problem could be,  the doctors ultimately decided that the only option left was to remove Bryan's spleen and have it biopsied. Bryan had his splenectomy October 31 ending with a great recovery and was eventually discharged from the hospital. Several weeks later the Mayo clinic pathology department, where the spleen biopsy was completed, suspected HSTCL and confirmed this diagnosis in the original bone marrow biopsy. Unfortunately because this cancer is so rare it was never included in the initial testing for Lymphomas.

Bryan started CHOP chemotherapy regimen December 22, 2014. He will receive this treatment once every three weeks and possibly radiation followed by a bone marrow transplant to eliminate the Lymphoma. Stay tuned for further updates.

Stay in the know. Sign up to receive email notifications the moment new Journal entries are posted