Hello friends. I wanted to pop on and give you all an quick update on what is going on with my amazing husband. Since my last post, Brian has received the Optune device and has been wearing it faithfully. If you haven't checked out the TedMed link from the January 1st post, I highly encourage you to. It's a pretty amazing, cutting edge piece of medical equipment that I pray will change countless lives for the better. The compliance rate they want you to have with the device is 18 hours a day, which translates to about 75% of the time. Brian has been wearing it 94% of the time. We figure the more time on it, the better. The arrays need to be changed every three days and he typically takes about 3-4 hours off treatment to allow for his head to get some relief and his body to get some freedom of movement. He likes to use part of that time at the gym, working out a bit and enjoying the sauna or steam room, and the jacuzzi. Though he was never really a "gym person", he does enjoy that time immensely. I have become quite the little expert on changing the arrays. It is actually a time that I look forward to because I get to care for my husband tenderly. We use part of the time to anoint him with sacred frankincense essential oil and pray over him.
Brian has also had three Avastin treatments and we pray they are doing good and no harm. The Avastin is supposed to shrink the blood vessels around the tumor and help with the swelling. He hasn't had any adverse side effects that we know of, and we thank God for that. There are some pretty harsh side effects possible, so it is a blessing that he is not experiencing any.
He started the oral chemotherapy Temodar in January as well. He tolerated it very well and like the Avastin, had no known side effects. He was supposed to start his second round on February 1st, but his labs indicated that he had increased liver enzymes, and so we are still waiting for them to come down. The neuro-oncologist is not sure if it is from the chemo or not, and wants to be safe. I want to throw everything at this evil monster and hope we can get started back on the chemo soon.
I am pleased to share that Brian is doing well in his spirit. He is truly closer to the Lord than ever before and is feeling at peace and is truly comforted. He faces challenges each day because his energy is very low and his speech is not what he'd like, among other things. The steroids (from which we are slowly tapering off ), have changed his body in ways he doesn't enjoy. He would love to go back to work, to interact with his colleagues/friends, and to enjoy the outdoor physical activities that he loves so much. However, he knows that for this season, that is not the plan. He really amazes me. I am daily blessed and encouraged by my man.
Brian will have another MRI on March 1st, at 9 am. Your continued prayers are so greatly appreciated. I cannot tell you enough how much your prayers and love have been touching our lives. You are the hands of God reaching down and giving us comfort and love. Thank you for that. Also, it has been an incredible blessing to receive all of the support in terms of financial gifts to help with the Optune. It is completely overwhelming in the best possible way to see all the support and when I read the accompanying notes and letters to Brian, we thank God for each one of you through many tears of gratefulness. May you be blessed beyond measure. Thinking of you and your amazing love, I am reminded of this scripture and thank you for making it so real to us:
"Greater love has no one than this:
to lay down one's life for one's friends."