Hi. I wanted update everyone since many knew that Brian had an MRI today. Unfortunately, I cannot bring you good news this month. It saddens me so much to let you know that the crazy monster GBM seems to be growing and no longer in abatement. It happened so fast. It has only been 7 weeks since his last MRI (which showed the tumor getting smaller and the swelling dissipating) and, as you can see from the image on the left, we have some considerable growth now.
So what is next? Well, I for one am continuing my prescription for HOPE. God is not done with Brian right now and it has been my prayer and all of yours that He will not be done with him for a long, long while. I am keeping with this hope and I pray you will, too. We want God's will, of course, but hoping that it entail using Brian here on this earth with us.
His course of treatment is changing a bit. He is no longer going to be doing the chemo Temodar, but switching over to Lomustine (CCNU). It's another oral chemo that may help. He is continuing on his Avastin infusions every three weeks. This is to help keep the swelling down. We are staying the course with the Optune and we are looking into some additional alternative treatments. I am back in research mode and will be looking at our options.
Brian is taking the news in stride. It is the first day with this news, so it has been crazy emotionally, but he is determined to keep fighting. He wants to be here with all of us. His family, his friends, all you amazing people who love him. Keeping spirits high with this kind of news is not always easy, and his speech has gotten worse, so he could use your prayers for strength, hope and healing.
The boys know the news and we would love your prayers for them and their processing of this. Mainly, we pray that they cling to the Lord and find a peace that passes understanding, while realizing the fragility of what they have. Making the most of every moment is what we all should do on a daily basis, right? It's just that when things are going well, or if they are even just ordinary, we sometimes forget to really, really love deeply and cherish each moment. It takes something like this to jolt us back into seeing our blessings and what we have been given. And how infinitely precious it is.
That's about all I can do for now, sweet friends. May God bless you and thank you so much for following our journey, and for your generous, heartfelt prayers and support.
Because of the Lord's great love
we are not consumed, for his compassions never fail.
They are new every morning, great is your faithfulness.
I say to myself, "The Lord is my portion;
therefore I will wait for him."
The Lord is good to those whose hope is in him,
to the one who seeks him;
it is good to wait quietly for the salvation of the Lord."