Share. Connect. Love.

Posted 2019-01-10T22:11:24Z


Well, we still don’t have the pathology report on the throat ulcers, so we haven’t begun the official treatment. But Brian improved enough in his capacity to eat and drink that they released him yesterday, to be treated out-patient.

While he was in, they did a chest CT to check the progress of the anti-tumor treatment. We were saddened to have it confirmed that the Cabozantinib has had a mixed result: working on the soft tissues, but unfortunately not on the bones, in which the cancer has progressed. This indicates discontinuing that particular treatment.

It’s not what we’d hoped, but the potential upside is cessation of the many unpleasant side effects from the Cabo. Then, when we see the oncologist in a fortnight, we will discuss possible next-line treatments and their potential effects. With that information, we can plot the course forward.

Brian is feeling much better now that he can eat and drink, though he is quite tired, his pain continues to be difficult to manage without excessive sedation, and nausea is still at hand. But we are comforted by the addition of a home visiting nurse, who will visit each week and be available on call. This might well make it possible to avoid some ER visits and hospitalizations, through ready advice and such services as home hydration.

We shall rest, then. And maybe take the Christmas decorations down. And upload those pictures of the new car that I had promised.

Stay in the know. Sign up to receive email notifications the moment new Journal entries are posted

Comments (17)

  • Nancy Zkumin
    Nancy Zkumin

    All I can say is you have got to be the strongest bravest people I know. God bless you both.

    one year ago · Reply
  • Linda Steer
    Linda Steer

    I’m glad he’s home with you, Clare, and that you will have a bit of peace of mind knowing there is a nurse to help you avoid hospital visits. I hope Brian finds pleasure in a bit of eating and drinking, and that the two of you are able to find comfort in your love. Xo Love from Canada and borderless good vibes.

    one year ago · Reply
  • David Kress
    David Kress

    Brian and Clare, We so appreciate these updates, as hesitant as we are to read them. Just know, we are always praying for both of you and your family, thinking good thoughts, hoping for some good luck, and sending strength and energy! This is a long horrendous battle and we are praying/wishing for successful treatments, comfort, and pain relief! All our Best, Glenn and David

    one year ago · Reply
  • Jean Manning
    Jean Manning

    I am saddened your news wasn’t more positive. It is good to know Brian is home and is able to eat and drink. You are both so brave enduring the situation you are in. Thinking of you and your family. x

    one year ago · Reply
  • Nora

    I'm glad Brian could go home. I do hope the visiting nurse proves to be helpful.

    one year ago · Reply
  • Barbara Beaton
    Barbara Beaton

    Hard to find words that might be helpful. Just know how much you are all loved and prayed for and thought about. So glad that Brian is able to be home rather than the hospital.

    one year ago · Reply
  • Ann Merry
    Ann Merry

    Love you both so much.

    one year ago · Reply
  • Vicki Hesse
    Vicki Hesse

    Prayers for you unceasing, love, Vicki

    one year ago · Reply

    Such a mixture .of news, but the pluses are being home, eating and drinking, and having some in-home nursing care. Continue to be brave and strong. Sending thoughts and prayers that the "parole" will last a long time with better and better results. Much love, Carol

    one year ago · Reply
  • Ian Reed Twiss
    Ian Reed Twiss

    Sending much love your way.

    one year ago · Reply
  • Kim Hagey
    Kim Hagey

    Hugs - so glad that you have nursing care at your home now.

    one year ago · Reply
  • Connie Ewing
    Connie Ewing

    Our prayers for both of you. We pray the Lord give you strength to live each day.

    one year ago · Reply
  • Maureen Shaiman
    Maureen Shaiman

    Well, there's no rush to take the Christmas decorations down.... It' not Valentine's day yet, after all.... Love you muchly.

    one year ago · Reply
  • Dianne Norrod Miller
    Dianne Norrod Miller

    Prayers continue. You two are always in my thoughts. I’m happy that the throat ulcers have cleared up. What’s your favorite ice cream? Eat a gallon!😊

    one year ago · Reply
  • Jeanmarie snyder
    Jeanmarie snyder

    Reading each entry and sending love and good energy to you all. If I could cook I would cook for you. If I could sing I would sing for you. If I could drive I would drive for you. Cleaning I am good at, so I’m happy to do that, just say the word. And praying I’m really good at so I’ll do that in the mean time. ❤️

    one year ago · Reply
  • Dianne Norrod Miller
    Dianne Norrod Miller

    “Come to me with a thankful heart, so that you can enjoy my presence. This is the day that I have made. I want you to rejoice today, refusing to worry about tomorrow. Search for all that I have prepared for you, anticipating abundant blessings and accepting difficulties as they come. I can weave miracles into the most mundane day if you keep your focus on me.”

    one year ago · Reply
  • Dianne Norrod Miller
    Dianne Norrod Miller

    Praying for peace of heart, mind and soul for you both. And, finally, a sense of victory over death and Faith in the Forever that is promised. Strength for your Spirits to be more than sufficient in all your challenges.🙏❤️

    one year ago · Reply