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Christian was diagnosed with Osteosarcoma in his left femur on June 28th. This site is for family & friends to get updates, prayer requests and insight into what our fam[...] read more

LATEST JOURNAL ENTRY - 2020-06-29T21:22:15Z

New Beginnings, New challenges

My apologies for the long delay between posts.  Transitioning into the pandemic, we were able to cherish some much needed family time that was finally able to be uninterrupted, without the weekly inpatient stays.  Thank you to those of you who have checked in over the last few weeks and months to inquire about Christian and his progress.  With everything going on in the world right now, we appreciate your consistent concern and prayers regarding Christian and his journey

In May, we found out that Christian had developed a bone infection, which expedited his need for surgery, but subsequently also convinced his surgeon, that his original surgery choice of the rotationplasty, would not longer be viable.  The surgeon advised that Christian have a more traditional amputation that required his leg to be amputated up to his thigh.  It was a hard pill to swallow after waiting for surgery to take place since March, but with the infection growing in his leg, we realized that we need to move forward.  Christian's amputation surgery was successful, however, we found out that despite the amputation, that there were still signs of an infection in his leg.  Our original hospital stay of 3-5 days, turned into 13 days inpatient, as we waited for the infectious disease team to identify which antibiotics would be most successful in killing the infection.

Christian was released from the hospital with several medications.  Thankfully, we had continued access to a home nurse and a home based physical therapist.  After several weeks, we are currently off of all medications but one and have terminated services with both the home nurse and home based physical therapist.  Last week Christian met with his outpatient physical therapist and had his first appointment with his prosthetist to begin the process toward getting fitted for a prosthetic leg.  We are hoping that we will be able to get a preliminary prosthetic in the next 3 weeks and hopefully a more permanent leg by late August.  

While we are definitely moving forward, we are certainly in uncharted waters and mindful of all of the new lessons and experiences that need to be learned.  We are grateful to be at this point, but absolutely still in need of prayers, as even in progress there are fears, anxieties and questions.  We continue to ask for prayers for Christian's overall health, his progress with Physical Therapy and the process of obtaining his new prosthetic leg.  We also ask that you keep the family in prayer, as we continue to work toward supporting each other and working together through new challenges.  

Thank you for your continued support and prayers.  We appreciate your love and concern throughout this ongoing journey.

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