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Christian M. - Journal

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Posted 2020-09-15T18:07:54Z

Clear CT scans!!!!

We are still at Hopkins, but just wanted to update with this good news. Christian's CT came back clear and Blood work looks good!!  We will find out soon when Christian can have surgery scheduled to remove his port(which was surgically implanted when he began Chemotherapy). So, thankful for this news and thankful for everyone's prayers and support.[...]

Posted 2020-09-14T13:35:21Z

One Day at a Time...

I'm hoping that you are able to watch the video I downloaded of Christians progress thus far. He is making great strides each day with his prosthetic and working hard in physical therapy. I was mistaken about the time frame he would be using this initial prosthetic, looks like he will not be ready to move into the next prosthetic for at least 3 months. But, no complaints. Our prosthetist has done a great job meeting our needs and this prosthetic is more than adequate. [...]

Posted 2020-06-29T21:22:15Z

New Beginnings, New challenges

My apologies for the long delay between posts.  Transitioning into the pandemic, we were able to cherish some much needed family time that was finally able to be uninterrupted, without the weekly inpatient stays.  Thank you to those of you who have checked in over the last few weeks and months to inquire about Christian and his progress.  With everything going on in the world right now, we appreciate your consistent concern and prayers regarding Christian and his journey[...]

Posted 2020-04-11T04:13:31Z

Moving Forward in the wake of a Pandemic

Needless to say, the entire world has changed since I last posted about Christian's journey.  As a result, Christian's journey has changed somewhat as well.  Since my last post, Christian has finished all of his scheduled Chemotherapy treatments, while  continuing to receive Immunotherapy treatments weekly at Hopkins.  We met with Christian's Orthopedic surgeon on March 17th to discuss his upcoming surgery, only to find out that his surgery was postponed indefinitely.  Hopkins(like most Hospitals would eventually do) had postponed all surgeries that were not trauma related(i.e. gun shot wound).  Our surgeon assured us that as soon as she received the green light from the hospital, that Christian would be first on her list.  The hospital wanted to ensure that there were enough ICU beds available for COVID-19 patients, and wanted to keep immune compromised patients like Christian away from the hospital as much as possible.[...]

Posted 2020-03-09T05:44:48Z

The End of One Chapter

Christian was admitted on Friday, March 6 for his last scheduled inpatient Chemotherapy appointment.  We are currently at Hopkins, hoping to be discharged tomorrow.  Basically, at the start of Christian's treatment we were told he would have 30 weeks of Chemotherapy cycles(3 weeks inpatient/2 week break). Tomorrow,  we will officially end this stage of treatment. [...]

Posted 2020-02-06T03:55:44Z

Looking forward to a New Year

I apologize for the long hiatus from the blog.  Honestly, we were able to have a two week break that coincided with the Christmas Break and I was just relieved for us all to be home for that many days in a row.  We all had a really restful and enjoyable Christmas and New Year.  So thankful for the many family and friends who stopped by, reached out, sent cards, sent gifts or just called and sent texts.  This year is significant for the way that we have learned how to be grateful for each day, moment and memory made together.  We are slowly learning about the need to not take life or each other for granted.[...]

Posted 2019-11-30T15:11:41Z

#Ravensfanforlife

Just wanted to share one of Christian's most cherished gifts he received this week from his varsity football coach. Coach Hannon has been an unbelievable source of support and encouragement for Christian during this process. And to be 100% clear, Christian has never played 1 minute of football for this Coach.  We truly appreciate his kindness and sincere concern for our son.[...]

Posted 2019-10-29T02:32:36Z

Home again

Just wanted to give a quick update. The surgeon decided Saturday evening that he wanted to squeeze Christian in on Sunday morning,  so around 8:30am on Sunday morning, Christian went back into surgery.  The surgeon was happy with the results. Christian's leg wound was able to be closed and he was given a wound suction machine that helps to keep the wound closed and he will have all week.[...]

Posted 2019-10-26T02:55:06Z

Unexpected admission

I apologize for the long hiatus from the blog, I have been trying to keep up with the day to day tasks associated with Christian's recovery and wound care.  Over the last several days, wound care became an increasing issue and we began to see Christian bleeding through his bandages more frequently.  On our most recent visit to the hospital(Wednesday),  I asked the nurses to check his leg. Thankfully, our oncologist took the initiative to page our surgeon, who very quickly came to look at his leg and then she took a picture and walked down to our plastic surgeon who was in surgery to ask his opinion. Our plastic surgeon quickly decided that Christian's leg was not healing adequately and requested we come back this Friday for a revision surgery( to fix the issue). They assumed he would be admitted for one day.[...]