Share. Connect. Love.

Posted 2019-11-30T15:11:41Z


Just wanted to share one of Christian's most cherished gifts he received this week from his varsity football coach. Coach Hannon has been an unbelievable source of support and encouragement for Christian during this process. And to be 100% clear, Christian has never played 1 minute of football for this Coach.  We truly appreciate his kindness and sincere concern for our son.[...]

Posted 2019-10-29T02:32:36Z

Home again

Just wanted to give a quick update. The surgeon decided Saturday evening that he wanted to squeeze Christian in on Sunday morning,  so around 8:30am on Sunday morning, Christian went back into surgery.  The surgeon was happy with the results. Christian's leg wound was able to be closed and he was given a wound suction machine that helps to keep the wound closed and he will have all week.[...]

Posted 2019-10-26T02:55:06Z

Unexpected admission

I apologize for the long hiatus from the blog, I have been trying to keep up with the day to day tasks associated with Christian's recovery and wound care.  Over the last several days, wound care became an increasing issue and we began to see Christian bleeding through his bandages more frequently.  On our most recent visit to the hospital(Wednesday),  I asked the nurses to check his leg. Thankfully, our oncologist took the initiative to page our surgeon, who very quickly came to look at his leg and then she took a picture and walked down to our plastic surgeon who was in surgery to ask his opinion. Our plastic surgeon quickly decided that Christian's leg was not healing adequately and requested we come back this Friday for a revision surgery( to fix the issue). They assumed he would be admitted for one day.[...]

Posted 2019-10-17T03:07:21Z

Recovery Day 8

Just a quick update to let everyone know that Christian was discharged today at about 6:00pm. I will provide more details soon. But, just wanted everyone to know that hes home. Thank you for your continued prayers and support.[...]

Posted 2019-10-11T17:27:23Z

Recovery Day 3

Unfortunately,  last night was a little more eventful than we would have liked. Christian's fever spiked to 102. The attending doctor ordered a chest X Ray in the room and additional bloodwork.  Thankfully, with the help of some Tylenol, his temp came down to 100, but he is still being monitored for the fever until it goes away. Unfortunately,  all of these events are not helping his appetite.[...]

Posted 2019-10-10T20:08:26Z

Recovery days 1 & 2

Christian's first full day in ICU was spent primarily trying to rest between a parade of residents and doctors coming in from different departments to check him and recheck him every few hours. He was even visited by the physical therapist who was able to get him out of bed with a walker and get him to sit in a chair for a few minutes. Unfortunately,  the movement triggered some additional pain and some time was spent getting his meds together to get him comfortable again. But, the pain issue was resolved within an hour.[...]

Posted 2019-10-09T02:19:07Z

Surgical update, pt 4

Christian is now in the Pediatric Intensive Care Unit. Tentatively,  he will be here for 24 hours to monitor his progress. During the initial checking in process by the nurse, Christian was able to squeeze her finger with both hands, and wiggle his toes on both feet!! Its truly amazing what God has done with modern medicine! [...]