The last 2 days have been a whirlwind of highs and lows. But, overall Christian is making good progress each day. Honestly. I am too tired to even do the day by day breakdown.
Christian's care here at Hopkins has been overseen by teams of doctors. The teams consist of : Plastic Surgery, Orthopedics, the Pain Team and Pediatric Oncology. Each day, each team is responsible to oversee and maintain certain aspects of Christian's care and then consult with the other teams, the nurses and us to make changes as necessary.
For the past 2 days, Christian has received 2 additional blood transfusions, as his hemoglobin levels have not been stable. Today is the first day he woke up without a fever, and we are hoping that will continue. Physical therapy was able to come in today and yesterday and work with Christian to actually walk with a walker halfway down the hallway on the unit. It was exciting to see and a sign of true perseverance for Christian.
Today Christian also was taken off of IV medications and is beginning the process of transitioning to pills for continued pain management.
Overall, the doctors are pleased with his process and excited with each new step forward. Prayers are still needed for the continued healing that is taking place. There is no need to rush home until Christian is really ready to go home. He is still building up his strength & stamina and we need his hemoglobin counts to be much higher.
Thankfully, last night was the first night that he ate anything in days. We are grateful for the progress. Sorry for the late update, but it has been an exhausting few days.
Peace & blessings