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Cody’s Battle Against Ewing’s Sarcoma

Cody was diagnosed with Ewing’s Sarcoma May 7th, 2019. His first step in treatment starts Wednesday, May 22nd with chemo for 12 weeks. Please follow this blog for updates[...] read more

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Posted 2019-11-13T18:09:28Z

A long awaited update!

I know it’s been a while since I’ve posted an update on Cody. The truth is that we have been dealing with some testing that was very high anxiety, and I truly didn’t feel it was necessary to scare anyone until we had answers ourselves. Now that things are GOOD, I can properly update you.


October 9th was Cody’s last day of radiation. One day shy of his 25th birthday. His body really struggled bouncing back between both the chemo and radiation together but he has been improving since radiation has finished. 


On October 28th, he was able to go back to the VDC chemo cocktail for the first time since July. He had a chest X-ray to check his lungs (standard 3 month check) that came back clear but I made him tell the doctor about “growing pains” he had been having in his left knee/shin. I asked her if he could do an X-Ray just to be safe. 
The results the next day showed that he had “patchy sclerosis” on the plateau of his tibial bone. Cue the anxiety. 
They ordered him an MRI for Friday the 8th to see what was going on. After waiting all weekend, we FINALLY got the news that the area was NON cancerous. After speaking with the PA more today, she said it’s most likely side effects of the chemo, steroids and bone marrow shot. It creates something similar to arthritis. There was some swelling in his calf muscle and ankle but she isn’t concerned it’s a vascular issue and is attributing it to lack of movement in combo with the medications.  I asked if a PET would be helpful in just making 100% sure, but she reassured us that that wouldn’t be helpful as a PET scan can give a false positive, especially with the swelling in his leg muscles. So basically- praise Jesus this didn’t spread to his tibia bone and that it is nothing more than a medication side effect. 


Today-Friday  is another cycle of VDC. This is cycle 10 so we are slowly starting to see the light at the end of this hell hole. He’s also getting a blood transfusion since his hemoglobin is at 8.4 and will only drop lower by next week. He has 2 more cycles of IE (5 day chemo) and 1 more of the VDC (3 day chemo). He will be maxed out of Doxorubicin (the D in VDC) after that cycle and his very last cycle will be a one day treatment of a different chemo. 
Assuming he bounces back at the 2 1/2 week rate, his remaining schedule is already set up. He somehow managed to dodge chemo for all the holidays 🙌🏻 and his last day of chemo is set for Wednesday, January 22nd. 


On Monday, January 20th, he will be getting a chest CT scan of his lungs to check for metastasis and will be getting an MRI rescan of his tumor to make sure it’s dead.  We will get the results in the morning before his last day of chemo on the 22nd. 


So that’s about it. Aside from feeling tired and his first real case of mouth sores this past week, he’s been doing pretty good. 


I will try to get back to the regular 2 week check ins! Stay warm out there 😰


Andrea 💛

 

 

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