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Colin's Transplant Journey

Updates to let our family and friends know what is going on with Colin's liver transplant journey

Latest journal entry

Saturday April 13, 2019

Colin's homecoming was Tuesday April 2nd and he felt very loved as we drove down our street lined with balloons to find our yard filled with welcome home wishes.  A HUGE thank you to the Kohlman family, Rebecca Clark and all of the KHS students, teachers, staff and YL who made signs, bought signs and decorated our street, yard and house.  It was amazing and something we will never forget.

Colin has been home for 10 days now and he is doing well.  His appetite is back and then some thanks to the high dose of Prednisone he is still on. The feeding tube was removed at his clinic appointment on Thursday. That was definitely cause for celebration!  He has gained about 12 pounds since he's been home, but still has a ways to go to get back to his pre-transplant weight.  His pre-transplant weight is not even the goal because that was also really low.  We're shooting for a normal weight for someone his age and size.

We go to clinic appointments twice a week and he requires labs twice a week still as well. The first 3 months after transplant are the hardest because he is in "protective isolation" meaning that while he is on high doses of immunosuppressant drugs we need to keep his exposure to anyone sick to a minimum.  This is the worst part because as you can imagine it gets pretty tough to fill each day.  Luckily the weather has been nice so we have been able to get outside to take walks, eat lunch at the park and even watch our favorite Ohio National all-star rock the baseball field.  Stuart and Laken visited last weekend which was fun and a nice change.

Walking is no longer a challenge and the stairs are getting easier each day.  Colin is now working on his endurance and stamina which will take a while to improve, but he's determined to make improvements everyday.  His attitude is great and he still amazes me with how strong he's been and continues to be through every step of this journey.  He's a true inspiration!

Thanks for your continued prayers and support they mean more than we could ever express.

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