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Deuce's Heart Journey

Chris Jr. (Deuce) is our heart baby. He has Hypoplastic Left Heart Syndrome (HLHS). This is his journey.

Latest journal entry

Daddy-ness

Today is day 18. Deuce is doing a little better and we are thankful to all of his doctors and nurses.  However,  I think we need a break from the hospital, the staff, and pretty much eveyone. We just need a break. Somedays it seems as if we are going through CABIN FEVER especially with us being in the hospital. When Deuce is out of the hospital we will definitely be taking a vacation, a long vacation, maybe to a remote island just to get away. These nurses are driving me to my wits end for things that they are not taking seriously. it frustrates me to my core but I really have to leave in it God hands and rest in him.  It's really hard to focus on anything else besides him right now.  Even though it's hard to get sleep because I feel like we can't depend on the nurses we are assigned, we just have to trust God and rest.   

 

 

 

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