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Posted 2018-12-22T04:14:37Z

Failed Surgery

Another day, another hospital stay.

Today we had an Endoscopy, Biopsy, and GTube placement surgery planned. It didn't go as we hoped.

The GI Doctor wanted to get what he called "scrapes" of different parts of her esophagus, stomach, small and large intestines, and colon. He was only able to get a "scrape" of her large intestines and the biopsy results of that will return next Wednesday to hopefully give us more clear answers. During this Endoscopy/Biopsy procedure, they have to pump gas into the bowels to create space to get what they need and clearly see the state of what's inside. The gas made her stomach balloon, therefore putting too much pressure on her lungs. Her oxygen and heart rate dropped quickly so they had to come out, but a few minutes later went back in to try suck out the gas they had put in to try go forward with the procedure. The whole team made the decision that it was in Ellas best interest to not proceed with the surgery. She is intubated and will be till morning, as long as everything goes well. Ross had left Menahga early this morning to be here for the procedure and it was such a beautiful time, as Ella gave us lots of extra smiles before going into the surgery room.

Nobody can prepare you for this heartbreaking reality. Seeing your baby sick and not being able to "fix" it as any mother or father would do for their child leaves us feeling helpless. With Ellas multilayered complex issues going on, the Doctors can't give us any definite answers. They actually say we are doing trial & error to figure this out.

The GI Doctor did tell us tonight that our stay here will be weeks, if not longer. Ive come to accept our life may be filled with hospital stays these next few years, as this is often a gastroschisis patients reality. We hope otherwise, and pray God guides and provides wisdom to everyone working to give us answers and move us in a direction to better health for Ella.

Ella is going to need a Gtube long term, and hopefully in the next few weeks, we will try the procedure again.

It isn't easy being away from Camilla and having to rely on others to take care of my other baby full time. I couldn't be more thankful for everyone who has helped us with her too, I can't imagine what her little self must be thinking and the emotions she feels too. It can't be easy being away from Mom for so long, as its not easy for mom to be away from her.

May God bless all of you who continue to remember us and pray for our sweet girl. She is the light of our life and we look forward to the days she will have better health. Also want to thank my husband, Ross for providing for our family and working so hard even during this trial we endure.

I want to share something my dad wrote, he has such a beautiful gift with words:

"Dear Heavenly Father… our daily bread comes by your hand… our breath each moment comes by your blessing hand…our lifeline to eternity comes by your will…not one thing that we can do in this life happens without you allowing it… you open and close doors…you can immediately change our path or desires, shift our focus or strip us bare… only through your son is our nakedness covered and are we then whole…corrupt and sinful is our everyday and every way…so in the face of your power, the only thing you ask of us is to trust you and to humbly submit to your providence in all things… remember baby Ella and care for her according to your will, and give faith and strength for Ross, Megan and their family.. in Jesus name, amen."


Sent from my iPhone

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Comments (14)

  • Mim Dozier
    Mim Dozier

    ❤❤ We are remembering your sweet family with much love and many, many prayers. Let us know how we can help ❤❤ God's Peace, Love Mim, Mike & kids

    one year ago · Reply
  • Lisa Johnson
    Lisa Johnson

    Remembering your difficult journey with Ella, and being apart from your husband, other child. The strength can only come from God. May He surround you with love, peace and prayers. We promise to hold you close in love and prayers! God's peace! Allan and lisa Johnson

    one year ago · Reply
  • Karen Haataja
    Karen Haataja

    What a precious message he wrote to you guys. I think of you often. May God give you the strength to keep moving forward and hope that Ella will get better! ❤️❤️

    one year ago · Reply
  • Martha Huhta
    Martha Huhta

    Dear Ross & Megan , Camilla & Baby Ella! Love your message...and so wonderful you were able to put this together for all of us! Thank you! Camilla is enjoying brushing her teeth with Nana right now...after an evening visit at Mummus! We are thankful we are able to help ! Remembering you and baby Ella in our prayers! 😘❤️ Love you! Mom

    one year ago · Reply
  • Savanna Martin
    Savanna Martin

    Thinking of you all as you go through this difficult journey with your sweet baby loves. We are all so blessed to have such a large support system in God’s kingdom from all over the world to carry us through difficult times like these. Prayers for better health for Ella in the days to come. ❤️

    one year ago · Reply
  • Lori loukusa
    Lori loukusa

    Those of us in our house this Christmas time are remembering you Ross and Megan and little ones. May God help little Ella to get better and care for all of you! Wishing you a blessed Christmastime. Gods peace and love, Pentti & Lori, Tina, Brita & Troy

    one year ago · Reply
  • Mackenzie Karvonen
    Mackenzie Karvonen

    Love the prayer❤️ So, so incredibly beautiful and touching ..

    one year ago · Reply
  • Jacqueline Rousu
    Jacqueline Rousu

    Oh sweet Megan, thinking of you and your sweet little family. I pray for you all, and the professionals that surround your life right now. Many hugs sweetie.

    one year ago · Reply
  • Janelle Huhta
    Janelle Huhta

    Megan and Ross, sweet Ella and Camilla, prayers for hopeful results, for endurance, for trust that all of creation is in God's hands. Why He has given her this trial, we don't know, but your deep love for her is a beautiful thing. And you are all loved and supported by family and friends. Love and God's Peace, Janelle & Ben and family

    one year ago · Reply
  • Barbara Huhta
    Barbara Huhta

    We are sending many prayers your way and heavenward, Ross and Megan! We love you! God's Peace, Andy, Barb and family

    one year ago · Reply
  • Joy Hillukka
    Joy Hillukka

    Remembering you Ross, Megan and family! Prayers for sweet baby Ella's health! Gods peace! Love, Paul and Joy

    one year ago · Reply
  • Sandra Keranen
    Sandra Keranen

    Dear Ross & Megan, Many prayers coming your way for continuing strength, endurance, trust, faith & acceptance as you travel through this journey of health trials with your sweet Ella. We are remembering you from afar, with much love & hope for the future. Wishing you a peaceful Christmas & God’s Blessings in the New Years. Love & God’s Peace, Mike & Sandra Keranen

    one year ago · Reply
  • Kathryn
    Kathryn

    Remembering you guys with so much love and prayers ❤️❤️❤️ God's Peace, Kathryn & Craig Siltala

    one year ago · Reply
  • Sarah Ravencraft
    Sarah Ravencraft

    Sending all of our love and prayers from NH❤️ May Gods peace that surpasses all understanding guard your heart and minds in Christ Jesus. Love you friends❤️

    one year ago · Reply