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Posted 2020-03-27T20:03:28Z

Update on Services and Post Hope Closing Down

All, due to the COVID-19 restrictions, there is just no feasible way to do services they way they should be done, at this time. Therefore, we have decided to delay services until later this summer when we can have a proper gathering and celebration of his life. We are planning on holding the main service and celebration in Maryland, but also plan to have a second celebration back in Seattle. Those that can make one or both are welcome to do so.[...]

Posted 2020-01-29T21:52:12Z

Update for January

All, here is a very overdue update on what is going on.

We went to the NIH on December 20th to get their take on the situation. They concurred with everything our NeuroOncologist stated a few days prior - new growth and a developing “shadow” on the brain stem. They really didn’t have a trial with any promise for either situation, and agreed that our best course of action was to continue Avastin as long as it was comfortable, discontinue the CCNU (why take chemo when it obviously is not effective?), our choice on the SurVAXM treatments.[...]

Posted 2019-12-22T00:07:42Z

Update For December

Update on current medical status. Darrell has continued on a combination of treatments including the quarterly SurVaxM vaccine (December 13th - cold in Buffalo, NY), CCNU every 6 weeks and Avastin every 3 weeks. For the most part, he has been doing pretty well with only a few setbacks with Brain swelling that caused some issues with control of his left side and subsequently his mobility. That is what drove us into the hospital back in October, and prompted another CT scan shortly after Thanksgiving.[...]

Posted 2019-11-07T04:33:49Z

Keeping active and enjoying the local community of the Pacific Northwest

This past weekend, we attended our first UW Football game. Go Dawgs!!

The Huskies ultimately lost, but it was a beautiful day, and a great new experience for Shawn and I to make and enjoy together. We did get Husky gear;  Something to wear to support the local team (when Duke  is not playing of course;). Special thanks Dellann Elliott Mydland and the End Brain Cancer Initiative  for the tickets and their continued efforts to support and advocate for the brain cancer community. We had a fabulous outing and are very grateful for the experience ! ... But we remain True DukeBlue[...]

Posted 2019-11-01T00:40:55Z

drum roll I got out of physical therapy and in-patient PT rehab!!!!

Amy Winehouse would be disappointed but you  guessed it, I said, “no, no, no!!!!! To staying  longer as I passed all required assessments and I really want to be home fast forward a little time and paperwork and shazam we’re home. The UNIVERSITY OF WASHINGTON iN-PATIENT REHAB center  was just what I needed. I WAS LOvingly greeted home by Buddy and Zuma. ‘Animals are great sources of love and comfort.   Happy Halloween!!! With much love and appreciation, [...]