Dellann Elliott Mydland
Dear Shawn and your and Darrell's entire family. All of us at the EndBrainCancer Initiative (EBCI) are feeling this HUGE loss today. I want to thank you for giving us the PRIVILEGE of meeting and serving Darrell as well as yourself. I also want you to know that Darrell and DEF the way he stood up to brain cancer is and will be a forever INSPIRATION to all of us who serve brain cancer patients every day all across the U.S. and in our work to ensure these patients have IMMEDIATE ACCESS to the best brain cancer specialists in the Nation, have a "top notch" brain tumor neuro-surgeon, have their tumor tissue saved and Next Generation Genomic Testing done on it and then utilizing this information to quickly get the patient into an appropriate clinical trial/advanced treatment in an effort to achieve a personalized approach to treating this disease and creating increased survivorship instead of a "one approach to all/current Standard of Care (SOC). Darrell was an awesome example of how patients should be treated with this disease and his exactly what we are advocating for and putting much resources behind related to updating National Comprehensive Cancer Network Clinical Practice Guidelines. We've had some success which was reflected in the last update early this year but we have so much more advocacy work to do so that ALL patients are treated as aggressively as Darrell showed us how. THANK YOU DARRELL!
Shawn, I want you to know that I am here for you anytime as you know that I have personally walked in your shoes. Let me know when you are up for coffee, lunch or VINO! Just connect with me at [email protected], www.EndBrainCancer.org or via LinkedIn. My love to you, Darrell and your family. Blessings, Dellann Elliott Mydland