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Posted 2018-05-16T23:48:41Z

Wednesday, May 16

It's really getting close. We might be able to bring Hannah home soon! For the most part, she's doing really well right now. She used to stop breathing randomly (indicating signs of apnea), but May 13th was the last time she did that. Hannah still struggles to breathe and drink milk at the same time, but the staff assures us that this is normal. Technically, I would have been 36 weeks pregnant yesterday, and our nurses remind us she wouldn't have to do any of these jobs (breathing, eating, etc.) for another 4 weeks. So while she's not an expert at feeding, she's learning how to do it. The other night, she stopped breathing during a feeding and turned blue on us. Staff trained us on what to do in these moments, but we're still advised to call 911 at home.[...]

Posted 2018-05-10T05:54:19Z

Wednesday, May 9

The ups and downs of the ISCU are exhausting.

This morning, we were told Hannah has (very quickly) caught up on a lot of gains she needs to make and to start getting ready to take her home. We weren't promised a date just yet, but we were told it could be very soon. How. Very. Exciting.[...]

Posted 2018-05-08T03:56:37Z

Monday, May 7

Overall, a good day. And we'll take it. Yesterday, Hannah turned one month old. We're sad we couldn't celebrate in the comforts of our own home but so happy she seems to be doing better than the last couple weeks. [...]

Posted 2018-05-03T03:18:24Z

Wednesday, May 2

Feel like we've been through the ringer, and we're at it again. Our nurse tonight noticed Hannah's belly was really distended again, and she has some bowel loops. The doctors came and ordered an xray, blood work, and poor Hannah is going without feedings again. Not sure how long she'll be without food, but it's heartbreaking all the same. [...]

Posted 2018-05-01T18:12:18Z

Tuesday, May 1

We've heard the ISCU would be a roller coaster until we get discharged, but there's just no way to prepare for the lows and hardships. A few days ago, our nurse noticed Hannah's belly was really distended and she could see bowel loops on it. These are obstructions causing the intestines to become enlarged, and you can see the outline of the intestines on the surface of her skin. When Hannah's condition quickly worsened, the doctors began treating her for NEC (Necrotizing Enterocolitis - a really serious infection in the intestines that causes inflammation). Her xrays were worrisome and the doctors felt more confident in stopping her feedings and putting her on antibiotics than just sitting by and waiting. We are so grateful that was the route they chose. Watching Hannah grow so sick that quickly was terrifying. [...]

Posted 2018-04-25T07:26:00Z

Tuesday, April 24

Dearest Hannah, 

Most recently, you've had some really good days - gaining weight, little to no drops in heart rate and oxygen saturation, and even taking some milk from a bottle here and there. We expected tonight to follow a similar story when we went to see you, but you offered us a gentle reminder that we're not out of the woods yet.[...]