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Posted 2020-04-29T20:08:01Z

Another day in Paradise...

I have lost count of the days I feel like I have been in quarantine. It's definitely been longer than our official/nonofficial 51 days of government requested home quarantine. I have been officially on the heart transplant list at a level four for 532 days.

If I could drive, go for a walk (alone) or talk my husband into letting me leave town for a few days with my boys I would feel a little less trapped but I know I can't change my health and my husband is trying to protect me. He's sweet. I do appreciate my oldest pushing me around our circle in a wheelchair. I really do. Usually two other siblings join and we bring the dog. The cat usually follows,too. But he cheats and cuts halfway through and meets us back by our house. But a walk alone with my pittie seems like a dream!

I don't have much to catch you up on. I'm home. I'm not sick with a pandemic type virus and I'm just as tired of all this as you are I am sure. I am mostly missing the handful of times I was able to see a my parents and friends each month. 

Today I am waiting for my nurse to show up and draw my blood. How cool is it that I can have a mobile phlebotomy nurse come to my home and draw my blood! I am so appreciative that I haven't had to enter a hospital or doctor office for over 6 weeks. It's been 2 months since my antibodies were tested (my PRA's. aka Panel-Reactive Antibodies). Don't be modest. You know you are feeling a little pride now that you learned a new medical term today.

Anyway. I'm sharing a picture of the vials and kits from University of Washington and Cedars Sinai for no reason at all. I just don't feel like taking one of myself today in my wild curly locks. I'm not feeling it. Maybe next month it will be sunny enough I can be sitting in the sun sipping an iced tea or cucumber mint water. That sounds nice doesn't it. 

I should get the results of my bloodwork back in a few weeks. Maybe just maybe this will be the turning point. If not, then I will fill you in on my plans after that. For now I am going to stay positive. I will keep believing in my miracle to come and trust I will get my chance to earn the record for longest living female with a heart transplant. That would be v cool. Yes. I did just do that. The kids are going to freak if they read that I just said "v". It means "very" and it's the only reason I did it. Too be v annoying to my kids assuming one of them will read this. Haha! You're welcome. In the past 3 paragraphs I have taught you a new medical term and a hip slang term all the cool kids use. I am cracking myself up. I am so bored!!

If you need a project, you can copy what I have been doing in the past few months. I have made a list of the things I want to do when I have a new heart, a new lease on life and the ability to leave this house on my own. I call it my "Gift of a New Heart: Dreams * Goals * Plans". It's original and catchy don't you think?! So far it includes ways I want to serve others that are in places emotionally and medically that I am now, places I want to go, climb, hike and site-see and who with, new exercise plans I want to take on that I was told I shouldn't or never could do because of my heart condition, and a reminder that I have wanted to babysit for foster parents but haven't had the energy to since it became heavy on my heart to do so. Don't tell my husband but I also want to have a monthly dinner and cards night with neighbors. Any and all that want to come over. Surprise Michael! (You have a while to get used to the idea.)

Take care my friends and any new readers to my crazy brain spilled out in typed words. I swear I'm not medicated. It's just me and my crazy mind today. 


Blessings to you all,



P.S. I was reminded of this verse this week. It's so fitting for my life.

"The earnest prayer of a righteous person has great power and produces wonderful results." ~ James 5:16

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Comments (1)

  • Lisa Eck
    Lisa Eck

    Love you so much Girlie! You are so strong and resilient in the face of some pretty big challenges. You encourage and inspire all of us with your steadfast faith, humor and diligence to stay in the fight. A million hugs to you today!!

    2 years ago · Reply