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Jackii's Fight Against Lyme

This is my story and my fight against incurable Lyme Disease

Latest journal entry

Posted 2017-04-24T00:36:30Z

Post Surgery Update

It has been 4 weeks since my hysterectomy on March 27th.  Surgery and recovery has gone well.  The only thing that has been tough is that I have not been able to take my detox baths since surgery.  No baths at all, only showers.  This has caused a major flare up in symptoms and quite a few more bad days than usual over the last 4 weeks.  We got to spend Easter with family despite my pain and it was very nice seeing everyone.  

This Tuesday I am having a new treatment performed in Eau Claire called Major Autohemotherapy (MAH).  Basically what this doctor will be doing is taking half a unit of my blood out, mixing ozone into it, then filtering it through UV light before putting it back into me.  Sounds pretty Sci-Fi but I have heard good results have been seen with the therapy.  This doctor may also provide IV antibiotics which could greatly speed up my time to remission.  This treatment will help to kill bacteria and virus' in my system.  It will also supercharge my cells so they can try to fight harder.

Wednesday I have an appointment in Milwaukee that has been moved up from July with the best Dysautonomia Neurologist  in the Midwest.  I was referred to this doctor by Dr. Cooley who is the Electrophysiologist that diagnosed me with Postural Orthostatic Tachycardia Syndrome, a disease common with Lyme.  So needless to say CJ and I will be doing quite a bit of driving this week.  Hopefully we get some good answers and the treatment on Tuesday does something to ease what my body and mind are going through.

I will make an update at the end of the week to let everyone know how these appointments went.

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