We’re about 30 days post-op and although recovery is going to be much longer than anticipate, Jailum is progressing well. On January 25, we transferred to the rehab hospital in Santa Clara. It’s the same rehab hospital he was at last time and we expect to be here for another week.
For six days a week Jailum has a fairly heavy schedule. Mornings start early with feeding and respiratory treatments and once that’s done, he gets right into it with 3-4 hours of PT, OT, and Speech.
Since his swallow is still not strong enough he continues to be fed through a NG tube. He has started to use more of the muscles associated with swallowing, however; progress is slow. We’re not sure how long it’ll be before he can eat by mouth but for Jailum’s sake we’re hoping it’s sooner than later. He had us start a food ‘want list’ a couple of weeks ago and, judging by its current size, once he's cleared to eat it is going to take us a few months to get through the entire list.
Looking forward to discharge next week, our time will be spent on getting everyone prepared for life at home. When we do get home we are hopeful for Jailum to able to use a walker around the house. When in public he’ll most likely use wheelchair. Like everything else, we expect him to recover to where he was prior to the surgery. It’s just going to take time.
That’s it for now. Thanks to everyone who has sent text messages, cards, care packages, balloons, etc. Jailum no doubt feels all of the love from everyone. It brings us smiles (and tears) to know how much everyone cares about him.