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Posted 2019-01-20T17:54:40Z

10 Day Post-op Update

As we enter day 10 post-op Jailum continues to make progress each day. We are still in the ICU and are hoping to be transferred to the ward within the next couple of days.

Post surgery we were informed by the neuro team that they found the AVM to be wrapped around the brainstem. This resulted in a more challenging surgery and has led to a much slower recovery. We’re counting our blessings that the that the AVM was identified last month as the way it was positioned it was only a matter of time before it ruptured. 

The two primary issues we’ve been dealing with over the last week has been respiratory function and ataxia (muscle control). 

From a respiratory perspective, Jailum was on a BPAP for most of the week as he was not able to fully breathe on his own. The good news is that he has gained strength over the last few days and has been fully off the BPAP since Thursday. His biggest hurdle moving forward will be regaining his ability to swallow and manage his secretions. We’re not sure how long this will take, however; based on his progress over the last few days we’re optimistic that he will be able to regain full respiratory function. 

From a muscle control standpoint, Jailum is experiencing more weakness than anticipated. He is receiving daily rehab and on Thursday we were able to get him out of bed and into a wheelchair. Being able to stroll around the hospital and go to the play room has been a great motivator for Jailum to get out of bed. Although he is currently unable to stand or walk on his own we’re optimistic that he’ll recover to where he was prior to this latest surgery.

Looking forward once we are in the ward we expect to be there for about a week. After that he’ll be transferred to Santa Clara hospital for intense in-house rehab. Depending on how he progresses we’re anticipating about a week of rehab before he would be able to come home.

Lastly, thanks to everyone for their continued prayers and well wishes. Jailum really enjoys reading all of the messages and cards. If you have a message for him we'll be sure to pass it along.

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Comments (8)

  • Melissa Madrigal
    Melissa Madrigal

    Thanks for the update! We are sending love and prayers- as always- and Gogo is looking forward to getting big friend hugs as soon as he can!

    one year ago · Reply
  • Melissa Rhyne
    Melissa Rhyne

    If there is anything we can do, just let us know. We are all praying for Jailum and all of you.

    one year ago · Reply
  • Pat Lane
    Pat Lane

    Yes, thank you so much for the update! Jailum came into my thoughts when I woke up this AM and I said a quick prayer. Sending a hug and good thoughts each day.

    one year ago · Reply
  • Maureen and Dave Chisholm
    Maureen and Dave Chisholm

    We are sending you happy thought and well wishes! You are one of the strongest guy we know and we look forward to see you soon! Luv Reen and Dave

    one year ago · Reply
  • Jesse

    Jailum continues to fight and progress daily. A true inspiration to us. We continue to keep you all in our thoughts and prayers.

    one year ago · Reply
  • Sue & Jim McIsaac
    Sue & Jim McIsaac

    We are sending all our prayers. Go Jailum!! You and your family are amazingly strong.

    one year ago · Reply
  • Ellen Durrer
    Ellen Durrer

    You are all in our prayers! Keep up the great work!

    one year ago · Reply
  • Vicki Bork
    Vicki Bork

    Hi! We are Dave's neighbors, Vicki and Tom Bork. We just wanted all of you to know that Jailum is in our thoughts and prayers for a full recovery. It's great that Dave can spend time with all of you and help out wherever he can! Your house is still upright, Dave! Take care!

    one year ago · Reply