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Posted 2015-12-09T19:24:26Z

Released from the Rheumatologist!

Whew!  Chemotherapy really did a number on my body, but I seem to be getting a bit better each day.  

It is amazing how much muscle mass I lost and how quickly.  Currently, I am able to walk between 5,000 and 6,000 steps daily with only some sore muscles, but that is a marked improvement from a month ago!  The blood tests processed back in the end of October showed some muscle inflammation and that my thyroid was within normal ranges, so the Rheumatologist was leaning towards fibromyalgia as the issue that was causing the muscle pain.  Well, only a month later he changed his mind when he saw the physical differences a month more of healing made and when I explained that the aches are calming down as time goes on and as I build more muscle back.  So he has released me from his care with instructions to continue building my muscles back and call him if anything gets worse.  I hope to be up to 7,000 steps per day with no pain by mid-January![...]

Posted 2015-10-26T20:33:00Z

The Final Hour is Almost Upon Us...AKA Scans Are Tomorrow

Tomorrow we are heading back to Philadelphia to find out whether or not I still have cancer. I would be lying if I didn't admit that I'm nervous and have been somewhat freaking out (just ask Pete)! Scanxiety is what they call the nervous fear that happens before each scan as you wonder things like is it gone, did it come back, did it spread? We have to be there at 3pm for an appointment with the Rheumatologist to, hopefully, find out what is happening with my muscles and joints. Happily, I did feel confident enough in the progression of my ear issues to cancel the ENT appointment. At 4pm, preparation begins for the PET/CT scan, but we won't know the results until around 10am Wednesday. We will update you all as soon as we can on the results.

Posted 2015-09-16T22:09:27Z

Six Week Follow-Up

Today we drove to Philadelphia to meet with Dr. Chura and Dr. Heese to see how I am progressing in recovery and discuss the next steps. We discussed some of the issues I am experiencing (such as a restless ache and random stabbing pains all over, continuing ear and nausea issues, hot flashes, etc.) and conducted an exam. The good news and really the point of this post is that everything looks "very good" and the results so far suggest that the treatment was indeed successful. Key word being suggest as we do not know for sure until a PET scan is completed, but the doctors are optimistic. On October 27th we will be returning for the PET/CT scan as well as a Rheumatologist and ENT appointment. So assuming that everything goes as currently planned, we will have an official answer on whether or not treatment worked.

Posted 2015-08-14T15:00:18Z

two weeks later

Its now over two weeks since the last treatment.

Jennifer is making slow progress each day. But is still getting tired. The chemo is still having some effects. For example hair loss. Fortunately it hasn't been complete. Her head hair has thinned somewhat. On the brighter side, no shaving :-)[...]

Posted 2015-07-29T16:03:24Z

Last day

Jennifer has just gone in for her final treatment. Now she just needs time to recover until we come back in a couple of months to see how well the treatment worked. Finally we can return to something resembling normalcy, we hope.

Posted 2015-07-28T19:14:00Z

Final Treatment Tomorrow

Tomorrow, Wednesday, July 29th, is the final treatment! We are definitely excited that treatment is (almost) over and looking forward to not having to travel back and forth. It will be awhile before we know whether or not the treatment worked, but the doctors seem optimistic. Can't wait to pull into the driveway tomorrow! I don't know about you, but I am hoping to celebrate with some cake, balloons, and flowers!!! And ice cream, don't forget the ice cream!

Posted 2015-07-27T15:01:47Z

Penultimate treatment

One more to go after today.

Jennifer was finally able to have a normal day on Saturday. We went up to front royal. Mind you she did pay for it by sleeping most of the day Sunday. It's at least progress and nice to be able to do a few fun things again.

Posted 2015-07-22T16:49:34Z

Counting down

4 treatment days remaining, including today. Radiation going well and to plan.

meetings with therapist and ENT specialist today. Hope that will help with recovery. But in general Jennifer is doing better today - not been feeling as much nausea yet.