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Jessica Clarke - Journal

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Posted 2014-03-12T00:22:51Z

Mar 11

I'm feeling ok, which seems to be a theme for week 3 of my cycles.  We have called off most of our help (with the exception of the food train which is still proving to be super valuable) and we are shooting for a somewhat "normal" week.  Cam and I spent the day together Monday which was great.  Today she was back to school after two weeks of vacation.  I think that getting back to normal every third week is going to be important for our routine.  We couldn't live without all of the help, but I need to pick myself up and be mom again when I can.[...]

Posted 2014-03-09T10:39:02Z

Mar 9

Finally feeling better this weekend.  At my appointment Thursday they had told me that I could stop receiving the shots for this cycle, then they called me at home and changed that.  It looks like I'll be on them through at least Monday.  I know my GR# was way down at the end of the last cycle.  They are probably trying to prevent that.  Blood counts from this week's appointments will determine the increase in my dosage for the next cycle.  [...]

Posted 2014-03-06T00:36:52Z

Mar 5

Not a great day.  The side effects of the chemo and all of the other medications are really getting me down.  Hopefully at my appointment tomorrow I'll get some more of this worked out and can manage it all better for the next cycle...and the next, and the next, and the next.  [...]

Posted 2014-03-03T21:21:41Z

Mar 3

I woke up feeling a little more normal today, which was great.  I can deal with tired WAY better than I can deal with incapable of lifting myself off of the furniture.  I had an appt. with Dr. Unger this afternoon and he said things are still going well.  All of my blood counts are inflated again due to Dr. Levi's handiwork with the "Shotter" as Cam calls it.  On another note, my buzz cut is starting to look pretty patchy.  [...]

Posted 2014-03-02T00:30:59Z

Mar 1

Today was an interesting day.  I laid on the couch ALL day.  I watched a bad movie while Levi and Campbell were out doing errands and having some fun.  I half slept for an hour or so.  I made a poor lunch choice which didn't make my tummy feel very good, and then I was able to drag myself to the kitchen to eat breakfast for dinner which was prepared and cleaned up by my amazing husband.  [...]

Posted 2014-02-28T01:19:41Z

Feb 27

Getting to the end of the treatment week is tough.  I am waking up at 5 am feeling pretty sick.  I'm still able to choke down the steroids and they seem to keep me going.  I had nice visits with friends and family, which was great.  I'm now in full crash mode on the couch.  Chemo brain has taken over and I feel (to quote a friend who has been through this) like a "wet dish rag".  Luckily the pump comes off at 2 tomorrow and I will start the slow climb back to feeling better.[...]

Posted 2014-02-24T22:20:14Z

Feb 24

I started my second treatment today.  It went much smoother than my first one.  I had no reaction to the Rituxan this time.  Because my body has seen it before, it doesn't identify it as a "foreign protein" and accepts it just fine.[...]

Posted 2014-02-22T11:02:53Z

Feb 22

I've been feeling pretty good lately.  At my Thursday appointment they told me that my GR# (germ fighter count) was quite low, but that again, it was expected.  It just puts me in that mode of being extra cautious about exposure to sick people.  Campbell's school is on Vacation for two weeks starting Monday.  This is probably good because some really nasty bugs were going around!  I'm trying to enjoy the weekend because Monday morning I get my trusty little pump back.  That means back on the steroids and anti-nausea meds for the week.  [...]

Posted 2014-02-18T22:44:47Z

Feb 18

As if on queue, my hair started to fall out in clumps today.  I guess I was just waiting for it to happen, so good, it has happened. 

When Levi got home, rather than playing doctor, he got to play barber.  [...]

Posted 2014-02-18T01:33:58Z

Feb 17

Over the weekend I was battling some "tummy issues" that I won't share the details of.  Fortunately, they have been resolved and I am feeling much better today.  All of this is still a struggle - but I think I'm slowly getting better at it. I've been sleeping well for several nights which is a huge help.[...]