Getting to the end of the treatment week is tough. I am waking up at 5 am feeling pretty sick. I'm still able to choke down the steroids and they seem to keep me going. I had nice visits with friends and family, which was great. I'm now in full crash mode on the couch. Chemo brain has taken over and I feel (to quote a friend who has been through this) like a "wet dish rag". Luckily the pump comes off at 2 tomorrow and I will start the slow climb back to feeling better.[...]
Jessica Clarke - Journal
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I've been feeling pretty good lately. At my Thursday appointment they told me that my GR# (germ fighter count) was quite low, but that again, it was expected. It just puts me in that mode of being extra cautious about exposure to sick people. Campbell's school is on Vacation for two weeks starting Monday. This is probably good because some really nasty bugs were going around! I'm trying to enjoy the weekend because Monday morning I get my trusty little pump back. That means back on the steroids and anti-nausea meds for the week. [...]
Over the weekend I was battling some "tummy issues" that I won't share the details of. Fortunately, they have been resolved and I am feeling much better today. All of this is still a struggle - but I think I'm slowly getting better at it. I've been sleeping well for several nights which is a huge help.[...]
Happy Valentines day everyone! We had a good day today. Cam and I got out to shovel a bit. Noni Karen came by for a visit so I got to call an old friend and take a rest. We had friends for dinner who did most of the heavy lifting and treated us to chocolate fondue while the kids played outside in the snow.[...]
Today was a better day. Although I didn't sleep through the night last night, I got WAY more sleep than I had the previous few.
My appointment went really well. I saw one of the PAs that I'd only seen once before, but we talked about a ton of stuff that I was dealing with and it was really helpful for me. They also told me today that Levi can stop giving me the shots until the next treatment cycle. He was pretty excited about that.[...]
It is Saturday morning and I seem to be doing ok. The farther we get through the first 3 week cycle, the more we will know about how I react and how to plan for the 5 ahead. I've been told I can expect to have a bit of a crash over the weekend and then I should start to feel a bit better over the two off weeks. [...]
Well, it has set in. I feel pretty gross. The crazy thing is that this is VERY reminiscent of the way I felt during the first trimester of my pregnancy with Campbell. Thinking about the wrong food item is dangerous. The biggest difference is that I can't seem to sleep even when I'm tired - likely because of the steroids - which I get to stop taking Friday when my first treatment cycle is done (yay). My night time anti-nausea medication seems to allow me some sleep at bed time. I've been creeping out of bed around 5 am to get to the couch and try to get some food and more pills down. [...]
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