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Jessica Clarke - Journal

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Posted 2014-07-29T17:08:56Z

Jul 29

I'm finally back to a place where I feel like my body can handle a workout. Activity was enough to push me over the edge until last week. I'm motivated to get fit again. My weight hasn't changed much but I expect I will gain a bit once I start to get stronger. [...]

Posted 2014-07-21T18:23:50Z

Jul 21

More already?

Today I find myself needing to read the research paper done on my treatment protocol. I figured it was a good time to share it. I don't think I did that before, as there are small bits of potentially bad news in it. Mostly, it is good stuff. Many patients started off worse than I did and the survival rates are TREMENDOUS.[...]

Posted 2014-07-21T14:11:15Z

Jul 21

I'm sitting in the waiting room at Fanny Allen half way through the Barium drinking challenge. Twenty oz. down and 20 to go. My CT Scan should happen around 11:00. Tomorrow morning I head into the doctor's office to get results.[...]

Posted 2014-07-18T19:13:43Z

Testing, testing

Are you still getting my post notices (if you once were)?

A dear friend just informed me that she stopped getting notices of my posts weeks ago. The poor thing thought that I might have taken a turn for the worst! If you have a moment to comment to let me know you've received this please let me know OR drop an e-mail to my personal account. Thanks![...]

Posted 2014-07-14T12:21:41Z

Jul 14

Funny, when I log in to create the posts the previous photo surprises me. That is how fast the hair is coming back. 

We had a great couple of weeks with Levi on vacation. Sadly he had to return to work today, but we are going to try to keep living like we are on vacation even though he is busy from 7:30 to 5:30. My philosophy through the vacation was to just do stuff. Every day I wake up feeling like I've run a marathon the day before. My muscles and joints are sore and tight and stiff. I also noticed that my knuckles (which are also sore) are swollen. I had to take off all of my rings. I'll get the scoop on that next week at my appointment. I thought that I'd be ready to start really working out by now, but I feel like what I need is a few days of rest! This is disappointing to me. I think sometimes that I just need to push harder and that will make things better, but I do feel a certain kind of sick if I push too hard. Yesterday I trimmed all of the hedges and bushes in the front yard. In my brain that shouldn't be a workout. My body argues that it is.[...]

Posted 2014-07-05T19:01:37Z

Jul 5

Walking, hiking, biking... we've been after it all week. When I get out of bed my whole body aches. Today we hiked at Niquette Bay again. We had lots of fun. The weather was nicer than expected. Updated hair growth photos are below. Sorry I can't figure out how to make them smaller! Click on it to see the actual proportions.  I already look less like "Powder" than I did in the last photos.[...]

Posted 2014-07-03T01:51:34Z

Jul 2

Today I created a new garden. Campbell and I dug sod, turned soil, hacked trees and planted perennials. It felt great. 

My fingernails are really weird. I think the term used to describe them is "clubbed", but that doesn't seem to capture what is going on. Ick. The doctor told me it takes 9 months for your nail to fully grow out. Double ick. I definitely have some hair activity going on. Levi said tonight at dinner that for the first time he could see the hair on my head without trying to look for it. My legs need to be shaved. My eyebrows look a little stubbly but only near the inside. I basically have two dirty looking dots on my brow. I'm hoping the tails show up soon! My lashes are maybe a quarter of an inch long.[...]