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Johnny's road to recovery

John was and active 12 year old boy who came down with the Flu on January 20th.(ie. he was skiing the day before) He has had some flu complications and is now at Medstar[...] read more

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Summary of John's illness

John was and active 12 year old boy who came down with the Flu on January 20th.(ie. he was skiing the day before) He has had some flu complications and is now at Medstar Washington Rehabilitation Hospital. recovering.

We created this site to communicate an overview of his illness and recovery.We are grateful and blessed to have been overwhelmed with the amazing support from family, friends, classmates, teachers and community.

In the middle of the night, woke up with flu symptoms. That Sunday, John had a 103 fever, chills, headache, congestion, tired and achy all over. Sunday evening, we took John an PM Pediatric urgent care and he was diagnosed with Influenza. He was prescribed Tamiflu. The next day, his breathing was worse so we had to go to the hospital. John has been to multiple doctor visits/hospital(s) and just wants to get better!

Here is a recap:

 
-Suburban hospital-breathing treatment for asthma-Pediatrician visit-breathing treatment rx steroids

-Suburban hospital-Influenza and Neuropathy transferred to Georgetown

Georgetown hospital-4 days, diagnosed Vestibular Neuritis-discharged

Pediatrician visit-Pediatrician consulted with Children’s and Dr said to come to children’s ER ASAP

Admitted to Children’s - CT scan, MRI of brain and spine, lumbar puncture All negative except LP showed white blood cells. Children’s 3 days then discharged with Orthostatic Hypotension and Neuritis.

Home for 2 days, double vision and bowel incontinence

Readmitted to Children’s - multiple tests - cardio, id, psych, physical medicine, ENT and neuro all had meeting with a plan.

Discharged from Children's

Was evaluated by Neurology, Cardiology, Infectious Disease, Psych, Physical Medicine and ENT.  We had a family meeting and the recommended plan was to go to rehabilitation to get John to walk again.. Theory is flu virus but possible concussion prior to getting flu. ( not incident of concussion).

Started RX-Gabapentin and moved to National Rehab Hospital Tuesday.

Main complication and concern is that he can’t walk or stand without assistance.

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