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Posted 2018-11-14T02:57:51Z

November 13th

Sunday was Kenna’s 27th birthday. We celebrated by going out to dinner with 12 days of Harry Potter socks and an ugly llama Christmas sweater. Those of you who know Kenna will know how that sums up her personality. Only she can rock an ugly llama Christmas sweater and do so proudly. :) 

We are officially over the 4 month mark since she was diagnosed. I think at this point the doctors had hoped her kidneys would start to filter the way they are supposed to. Unfortunately, they are not. She is making urine again but her kidneys are not filitering any of the toxins out of her body. Dialysis is still essential to keeping her body as toxin-free as possible. 

Tomorrow she goes in for a paracentesis.  For those of you who have been following this blog from the beginning you will likely remember that she was getting a paracentesis (fluid removal from her abdomen) every 7-10 days and averaging around 2 liters of fluid being taken off. A few weeks ago she went 3 weeks in between the paracenteses and they only removed 1.5 liters. This was great news and we were hopeful it would be indicative of things improving. Unfortunately, she was in need of a paracentesis 10 days after that and they removed 3.1 liters. Tomorrow is only 9 days since her last one. 

As for her liver, her liver team is holding out that she will improve and not need a liver transplant. At this point, her numbers have improved but not enough to disqualify her for transplant. They will not put her on the list until they are absolutely sure she will need the transplant. This has been a frustrating process. While we would love for her to not have to have transplant surgery we feel like we are in limbo. 

Please keep Kenna and my parents in your thoughts, prayers, well wishes - whatever it is you do during times like these. Kenna has kept her chin up and finds little things to be thankful for but I know she is exhausted. If you have a minute a simple text, card in the mail or phone call would make all the difference to her. 

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Comments (7)

  • Kelly Gaudet
    Kelly Gaudet

    Sending infinite love and prayers to you all. 💚

    one year ago · Reply
  • Terry L. Barkhaus
    Terry L. Barkhaus

    Always thinking about you, Kenna! I admire you with your positivity and your faith that you will get through this. Lots of hugs and love, Auntie Terry and Uncle Dennis 💕

    one year ago · Reply
  • Ralph Koscheka
    Ralph Koscheka

    Thanks for the update, praying for a miracle

    one year ago · Reply
  • Aileen Searles
    Aileen Searles

    Much love, Kenna. Praying for you everyday. Keep up your courage and may God give you strength and peach. <3

    one year ago · Reply
  • Walt Scoggins
    Walt Scoggins

    and some strawberries too!

    one year ago · Reply
  • Walt Scoggins
    Walt Scoggins

    P.S. Happy Birthday! I have this app on my phone that sends me a few photos from this day in years past and yesterday it sent me some pictures of you and Jacob playing in the sand at Cherry Creek State Park probably 20 years ago. You guys were pretty damn cute. Hang in there and keep your chin up. It's sucks that you are having to deal with this sickness at your age but you have the spirit to take whatever life deals you and kick it's ---.

    one year ago · Reply
  • Pamela Killingsworth
    Pamela Killingsworth

    Happy Belated 27th Birthday, Kenna! Praying for you! Pamela Killingsworth

    one year ago · Reply