I certainly am happy that I don’t have to post so much anymore, our goal is to be boring again! I will continue to make just a few more posts until I have the energy to answer texts and emails etc. Please know that I so appreciate all your emails and texts as well as your posts here even if I am unable to answer them. They are inspiring and uplifting and some of the notes really make us laugh.We have been home since Thursday and I have yet to unpack my suitcase from the hotel! I did unpack all the medical supplies which were four bags full!
Things will get easier and Jeff will feel much better when he gets his drain removed and is able to get the catheter taken out. Susan’s kidney is working so well that I have to set the alarm for every four hours at night to get up and empty the catheter bag. Never knew we would be so happy to see urine and talk about urine.
We spent another seven hours at the hospital yesterday,(Saturday) and they want to see Jeff again Monday morning at 7 AM. So we have one day at home where he can rest and then one day at the hospital which is a huge effort for him.
They said his kidney numbers are stellar! Such great news. He did however have to have two bags of IV to replace some of the things that his numbers showed he was lower on. They also changed his antirejection medicine again. Apparently this is common in the beginning as they check his blood levels and adjust appropriately. Just when I learn something they change it!
I am seeing signs of improvement as Jeff is more interested in what is going on in the world and actually wanted to look at the news for a while. He still can’t concentrate enough to read but that will come soon enough. His pain is slightly improving each day and he actually sat at the table for 10 minutes before he had to lay down again. We are told that his transplant is harder to recover from because he also had the nephrectomy (Removal of one kidney) which was so oversized. He is not requiring quite as much pain medication and that is a good sign too.
So, one day at a time. Looking forward to when he can sit on the deck and enjoy some of this beautiful weather. We both have a greater appreciation this spring of all the beauty around us. And that beauty includes all of you, our wonderful friends and family. 💚💚💚💚💚💋💋