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Surrounded by Angels

This site is for our sister Karen.

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Posted 2019-11-01T22:10:11Z

November Notes from Karen

Update

“I believe in being strong when everything seems to be going wrong. I believe that happy girls are the prettiest girls. I believe that tomorrow is another day, and I believe in miracles.” – Audrey Hepburn

Pet scan completed on Monday, October 14, 2019. 

Once again we got good news and not so good news. 

They found new lesions on liver, kidney, and lower spine.  This report was consistent with the CT scan.  We did not know about the spine until my appointment with Dr. Gadgeel, the U of M Oncologist, which was Thursday, October 24, 2019. 

I also had fluid in the left chest cavity removed on Tuesday, October 22, 2019  They removed a total of 1100 cc of fluid – once again I was amazed at how much fluid it was. It is immediate relief in my breathing whenever I get this done.  It was harder on me this second time – not really sure why because I knew what to expect.  I will go in on Tuesday, November 5 for the ultrasound to see if there is fluid build up to remove.  Dr. Balaraman, Oncologist at Royal Oak Beaumont, feels that the Xalkori chemo is what was producing the fluid which was tumor related and feels it will go away with the new chemo drug, Alimta, I started today, Thursday, October 31, 2019.   

Alimta chemo was suggested by Dr. Gadgeel. This chemo damages the RNA or DNA that tells the cells how to copy itself in division.  When the cells incorporate substances like Pemetrexed (generic drug name for Alimta) into themselves during growth, the cells lose the ability to divide.  Dr. Gadgeel was also going to submit the biopsies from the lung and kidney for testing for the HER2 gene. He was being proactive. If the Alimta doesn’t work or stops working this is another clinical study currently being researched.  We are very lucky to have him on my case to oversee and continue to keep us and Dr. Balaraman up-to-date on all the current and upcoming means of treating my specific case. 

We hope to get scheduled another PET scan at the end of three Alimta chemo treatments which are administered every three weeks, so the estimated date for the next PET scan won’t be until after December 12, 2019. 

The ride continues on and I will continue my fight.  I won’t let this get the best of me – I am strong, determined and have a will that just won’t stop. 

I love my grand kids, family, and friends so much and with their continued support, love, and encouragement I will forge ahead. 

Thank you everyone for thinking of me! I appreciate all the prayers and support! 

Love to all and God bless!

Karen

 

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