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Surrounded by Angels

This site is for our sister Karen.

Latest journal entry

Posted 2020-01-04T14:58:06Z

New Year News

Greetings, 

The most recent PET scan was completed on Friday, December 27, 2019.  I had a follow-up appointment scheduled with my oncologist on Thursday, January 2, 2020 (more about that later).

Once again we got good news and not so good news.  The cancer is still spreading, with one new lesion found and increased activity in a couple of existing areas.  The good news, one area is no longer evident and another has decreased.  It is a very technical report and has not yet been fully evaluated.

I have fluid in the left chest cavity removed/drained about every 2-3 weeks.  The amount they have been removing has been consistently between 780 cc to 1100 cc of fluid. I don’t look forward to this but it does help in my breathing.    

On Monday, December 30, 2019, I left a message with Dr. Gadgeel, U of M Oncologist, that I had the PET scan completed.  Dr. Gadgeel called me back the next day and told me he got my message but the test results were still unavailable as of our call.    

I went to see Dr. Balaraman on Thursday, January 2, 2020 with the understanding I was going to hear the results of the PET scan. However, to my surprise, Dr. Balaraman was on vacation. Dr. Ballou, her associate, did tell me that the cancer was spreading but because he did not know my situation he did not want to do anything until Dr. Balaraman got back. So I did not get my scheduled chemo treatment.  Needless to say, I was very upset – it was a big deal that I get this test completed before the January 2 appointment and then she wasn’t even there.  I immediately called Dr. Gadgeel, U of M Oncologist, and left him a message that the PET scan results were in and Dr. Balaraman was on vacation.

On Thursday afternoon, Jen, Dr. Balaraman’s right hand, called me to make sure I was okay.  I told her about being disappointed that the doctor set up a very important test and appointment to get the results and then was not there! Jen was very surprised I didn’t know. Jen is a very caring, understanding, personable professional who truly cares about her patients and I just love her. 

I now have an unscheduled appointment with Dr. Balaraman on Monday, January 6, 2020 at her Botsfords office.  I insisted on this with the receptionist.

Friday, January 3, 2020, Dr. Gadgeel called me at 8:00 a.m. to let me know he saw the report. He immediately wanted me to get him the CD images from the October and December 2019 PET scans.  I called Royal Oak Beaumont records right after our call and requested the images.  Bob and I picked up the CD and drove it to U of M  Northville Medical Center and dropped it off. 

Dr. Gadgeel wants his radiologist to look at the scans.  He mentioned a biopsy but until he talked to the radiologist was not specific as to what area he wanted to biopsy. He was talking about getting into another clinical study but again was not specific at this time. 

Dr. Gadgeel is requesting a Thursday, January 7, 2020 appointment in the Ann Arbor office. 

Mind you, this could all change – It’s a roller coaster that keeps on rolling. 

I have to admit my spirit has been a little broken – but that still can’t and won’t stop me from fighting this until it is defeated!!!

I love my grand kids, family, and friends so much and with their continued support, love, and encouragement I will forge ahead. 

Thank you everyone for thinking of me! I appreciate all the prayers and support! 

Love to all and God bless!

Karen

Photos included with today's journal are from Ashleigh and Kevin's wedding (look at the handsome guy I'm walking with) and from Christmas with my kids and grand kids.

"When life gives you a hundred reasons to cry, show life that you have a thousand reasons to smile."  ~Author Unknown

"One day I saw myself smiling for no reason, then I realized I was thinking of you." ~ Author Unknown ... Actually, thinking of you can make me laugh until I cry...from the editor of this site. :)

“Courage does not always roar. Sometimes courage is the quiet voice at the end of the day saying, ‘I will try again tomorrow.” – Mary Anne Radmacher

 

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