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Posted 2015-10-20T01:06:30Z


Tomorrow, Tuesday October 20 Annie has surgery scheduled to get her PEG tube out and to then get the MIC KEY button. We are so excited. The new hardware is flatter and easier to conceal. She won't have a long tube sticking out of her shirt all the time. But. I have to wake up at 2:30 am to give her a final feeding. I'm not excited about that. We have had some progress with the wbl school district. They have 0-2 serviced and she (obviously) qualified. Starting next Monday we will have an OT that comes to our house. And we totally click with her so that's been positive. We have cut down to just one therapy a week at Children's. I will post an update tomorrow. Annie will go under anesthesia tomorrow but it is an out patient procedure. So please pray for an easy procedure, wisdom for the doctors and PEACE for this worried mama. Thanks!

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