I don't get to post in here as often as I'd like since I haven't been able to see mom and I've only talked to her three times since she went to the hospital 2.5 weeks ago. Today I thought I would try calling Jay to see if mom would be up for talking. I knew she had already had a tiring day with visitors and getting out of bed.[...]
Lois Allen - Journal
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Mom had a rough night again, saying she's not sleeping which isn't helping her mind stay positive. Chloe and I arrived around 930 and mom wasn't sure she felt like getting out of bed. I didn't want to be mean but I looked mom in the face and told her "I know this place SUCKS. It's not enjoyable, it's loud and it's painful. But you NEED to do this. Even if we don't make it out of the room, you NEED to try today." God love that woman because she did it and she rocked it. I was able to wash her hair prior to heading down and mom had tears in her eyes during mass. [...]
Mom had a slow day in the hospital today but, as I often tell my patients, a slow day in the hospital is a good thing. Justin went back home to Colorado early this morning with a promise to return very soon. Chloe and I went to visit in the morning and stayed til mid afternoon. Mom rested most of the day although she's definitely still in a fair amount of pain.[...]
Mom had a great day today, very tiring but still good. Justin got there early and helped order breakfast while Chloe and I stopped to pick up flowers, yummy smelling lotion, and a really pretty fleece blanket. Justin met mom's new hospitalist Dr. Botkin who was "hand-picked" by her ICU physician after she left last night. Her ICU Dr. Roberts, was absolutely outstanding and was so beneficial in getting mom on a better medication regimen so that her pain was more well-controlled and he and I had more than one discussion about my fear of leaving him and having someone else change things too quickly. Dr. Roberts actually told me that he had talked with Dr. Botkin two days prior to moving mom so that Dr. Botkin was very aware of where she was and where she had come from. Justin was at the hospital when Botkin rounded and I wasn't so I will let him add in any necessary details.[...]
Today hasn't been a big one which is exactly how we like it.
Heather, Chloe and I woke mom from a slumber when we arrived at 8. She had a fever at 8pm which I feared coming on when it was time for me to leave at 7pm. I knew the nurse assigned to her so I felt comfortable going home. More fevers are to be expected with the infection but thankfully they don't tend to last more than a few hours.[...]
We met a new doctor today, Dr. Bain who is with neurology and he did a lot of explaining. Yesterday when talk of the surgery began, we weren't given the extensiveness of mom's abcess. We asked Dr. Bain for more detail as Justin and I had both begun picking up cues from the rounding physicians. Dr. Bain told us that none of mom's physicians had ever seen an abcess as large as mom's in their entire career. We found out that mom's surgery had bumped someone else's as it was that emergent to remove the fluid. According to the doctor, had the fluid expanded even a millimeter more, mom easily could have been paralyzed from the neck down. I'm sharing this information now because things are moving in such a positive direction. Dr. Bain told mom that she should get a plaque on a wall here and informed us all that he does not think any of the physicians here will ever see something like this again in their career. [...]
I know I just sent an update but this requires another one.
Dr. Wack from Infectious Diseases just stopped by and, among other things, gave us the great news that blood cultures from 6/5 were negative. They didn't draw cultures yesterday but I believe they drew them on 6/6 and we'll get news on those to verify. She'll definitely have more blood cultures drawn and tested but this is amazing news we are celebrating. Mom is eating her second red popsicle as I type and she has told me she's switching to green after this one is done.[...]