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Hello

Well , sadly, this one isn't quite as good as the last one.  They found some new leaky blood vessels on the last scan near the margin of surgery.  These are most likely a result of the treatment protocol not working and new cancer cells are growing; not unusual in this type of cancer, evidently this happens to approx 50% of people on the first drug.  As soon as the Cancer Agency can fit me into the infusion cycle (7-10 days) I will begin a new regiment of oral chemo 1 day/every 6 weeks combined with 2 antibody infusions over this time period - the infusions will take only a 1/2 hour -1hr to infuse as it is not a chemo drug so they can push it through a bit faster.  They like to run these for 2 cycles before scanning again, so next scan in 12 weeks.  I will be put on stronger anti-nausea meds for the first few days of oral chemo as it is a much stronger drug.  [...]

7 days until I can drive!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Hello

Met with my nurse practitioner on Tuesday.  She is AMAZING.  Didn't see the neuro-oncologist, she let it slip that he was off having lunch.  The good part about that is nothing interesting is happening with me that needs his attention.  :)  Both sets of blood tests were fine so up goes the dosage, but they would rather I didn't wait to start it - so off we go to LA and San Diego with all my meds including some extras so I don't need to go to a clinic if I start to feel bad. [...]

Made it ...

Hi

Well I made it through the 5 days of oral chemo with just a  few nauseous moments.  Seems like eating small amounts regularly is the way to go, even though I don't really feel that hungry.  Could be much worse though, both in terms of at least food still tastes good....and I didn't throw up.   I get 23 days off now, blood work in week 3, further blood work before I start the next round in the beginning of April.  [...]

Treatment starts again

Hello

After a month off, oral chemo starts again today for 5 days, followed by 23 days off.  This will continue for 6 months.  This is the same drug I was on during the radiation treatment, albeit at a much higher dose.  The side effects seem to be mostly nausea which they treat prophylactically with anti-nausea meds.   I didn't have any side-effects before so hopefully that continues.[...]

No news is good news

Hello

I don't really have much to report, still losing hair - maybe more slowly because there is less left or perhaps it is actually slowing down.  Not sure.  2 weeks since my last radiation, feeling pretty good though, really my only complaint apart from this whole thing happening is that I can't drive.  56 days still seems like a long way to go .  It drives me crazy when people say you are almost there...that does not help.  I did get my car...it is in the garage.   Might be the only time in my life I actually read the manual, I may go sit in it later today and if I am super bored I will drive up and down the driveway.  :) [...]

5 more to go!

Hello

Not a lot new to report apart from having 2 more days of oral chemo and 5 more days of radiation.  I am getting there.   Still feeling remarkably well.  Between getting out to my treatments and to the kids' basketball games that seems to be enough excitement for the moment.   I have to remember that even if I am feeling okay, I still need to allow my brain to rest and recover.[...]

Sunday - 11 more to go

Hello

Not really much new, 11 more days of radiation.  3 months until I can drive.  Still feeling well.   It seems like I will be cutting my hair short eventually, otherwise when it grows back i will have spikes sticking up around my head.  There is a min length you need before said spikes will flatten.  Allison thought this was kind of funny.[...]