Our girl has been a real trooper. She is by far the toughest girl we know.
Jayla will be having a surgical procedure Monday morning to remove her hemo-dialysis catheter, also known as a hemo-cath.
Yes, that is correct. Yes!
Her catheter was put in surgically the day after we arrived here at Children's Mercy. It was a procedure, a small procedure, to put the catheter in her chest. It goes into her jugular vein and curves around to her heart. We have to be extremely careful to keep it protected.
The catheter will be removed tomorrow morning, as she NO LONGER NEEDS DIALYSIS! Praise the Lord!
Jayla has not needed dialysis since last Monday and her team of doctors feel that she is doing great. All of the results of her lab work look great. She looks sooo much better than a week ago, and especially a month ago.
Jayla is doing a fantastic job of breathing on her own and as of today, she does not need respiratory therapy anymore. Her oxygen stats are perfect. And her output is 1227mL, which is fantastic!
She had to have her 11th (we think...;) IV line tonight, and hopefully the final one, in preparation for tomorrow morning. She was not thrilled about that, and I certainly don't blame her. The vascular team is very good here, but besides being scary, it's still not fun to get an IV.
We truly appreciate all of the cards and letters and packages and deliveries from you guys! Jayla is just at a point now of wanting to open them and she just smiles as she reads your sweet messages. She is backed by such a great bunch of supporters and you know how to make us feel loved from inside of these hospital walls. Thank you. Thank you so very much.
We appreciate you checking up on her and we know she will be strong for her procedure in the morning. We ask for her strength, and for God to protect our sweet Jayla. Lord, guide the hands of her doctors and nurses and help her through her recovery. #JaylaStrong 💪💁