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To update people of Jims journey withCJD syndrome.

Latest journal entry

Posted 2018-08-15T18:29:50Z

The journey!

In January of this your Jim had a few hard nights getting to sleep after a few nights! I told him he needed to ask our doctor about this he was told he may have restless leg syndrome! Give medications to help then the walking becomes off the gate! Back to doctors then back and forth a few months. Then in April I noticed something that he was missing dates and times in May I voiced this to our doctor and he started test for about 5 weeks with on results then the spinal tap and 5 more weeks of waiting got the diagnosis of Creutzfeldt-Jacob syndrome. So on Friday we entered Hospice. Jim is comfortable and safe at home with the support of family and friends will update in about a week.

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