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Love for Luke

Luke was diagnosed with stage 4 alveolar rhabdomyosarcoma on August 19, 2016. He started treatment on August 22. We appreciate all of your support.

Latest journal entry

Day 217...

Luke had a pretty good weekend, except for a few aches and pains that slowed him down just a little. Friday was a beautiful day with the temperature almost touching 80 before it dropped very quickly to 45. He spent a lot of time outdoors with Penny, even on Saturday and Sunday when there was rain around. He also put in his first official hours working at Abt. He's a virtual reality demo specialist. They've said he can work on weekends when he's feeling up to it, no pressure. The HTC Vive headset is pretty cool, and the roller coaster rides are very realistic. Teddy and Kate both stopped in to try it on Saturday.

I'm pretty thankful for Penny these days. A friend pointed out the other day that there was a time when that was the last thing we would have expected me to feel for Penny. Boy, did that dog get into some trouble in her first couple of years -- like on the night when she ate 6 dozen cookies that I had made for a book club cookie exchange! It took me a while to forgive her. She's pretty great dog now, and she's such a great friend to and motivator for Luke. If only she would stop wandering into our neighbor's yard to poop when we're not paying attention!

Luke's community of love and support has grown so much through Penny too. He and we have met so many great people (and dogs). Knowing Luke, he might have become friends with them even without Penny, but she was a good ice breaker.

Luke and I checked into the hospital this morning for our spring break. He's got 5 days of ifosfamide and etoposide this week, which means lots of hydration and round the clock peeing. Luke was last inpatient January 9-13, so it's been a nice break. We really didn't miss this place! Maybe we missed some of the nurses a little, but visiting would have been just fine.

Kate came by for a few hours to hang out and be a sweet big sister. She almost didn't make it past the front desk though, because the hospital is on winter flu restrictions. No visitors under 18 years old allowed. I think they let her come down the hall because she had brought us lunch. The child life specialist is working to get a Penny visit approved as well as a Kate visit. It would be pretty crazy if Penny could come and Kate couldn't.

Luke's not feeling his best tonight. I'm hoping and praying that this round is kind to his body and very very unkind to the cancer.

Thank you all again for everything!

Amanda
#lukestrikesback