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Luke G - Journal

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Posted 2021-03-25T01:36:13Z

Scan day...

Scan day - Instead of the picture of the MRI machine or the danger strong magnet door, we have the picture of Luke driving off to his MRI by himself. Mom's not allowed since he's 18, and there's a pandemic. CT is Friday morning. After the CT, Luke, Grandma and I will hit the road for him to see St. Olaf College in person for the first time. Sure hope he likes it! [...]

Posted 2021-01-03T02:18:08Z

Iffy but ok...

Happy 2021! Luke's scan results were more iffy than I'd like, but probably ok. 

There's an area of concern on a toe on his left foot - they think it's possibly an infection or inflammation related to a fracture. Extra eyes are looking at the images, and they did some extra bloodwork to look for infection and inflammation markers. His left foot MRI images are always complicated because they "radiated the heck out of it" (quote from a doctor) and because of all of the miles he puts on. No one seems to think it might be cancer, but I'm unsettled. [...]

Posted 2020-12-28T21:08:44Z

Scan day is here again...

Luke had his CT and MRI this morning and his echocardiogram last week. It's been 3 months today since his last scans, 3 months since my last post here, and also 3 months today since my sister Kristen was taken by ambulance to the hospital where she passed away the next morning. Kristen adored Luke and was one of his biggest champions. My relationship with her was complicated, but I miss her and I think I've been finding it hard to write updates about Luke that she isn't here to read.[...]

Posted 2020-09-28T13:47:21Z

Scan day...

It's scan day. Luke is in the MRI now and will have his CT right after. 🙏🏻🎗

He ran 41 miles last week, up from his usual 30. The orthopedic surgeon who has treated his stress fractures has encouraged him to limit his miles and mix in some biking - maybe he'll get back to that this week. He has had pain in his good foot the last couple of weeks. Things like that always strike fear in my heart, but it seems pretty clear that it's tendonitis. Fortunately, it doesn't bother him much while he's running.[...]

Posted 2020-09-12T20:57:00Z

Running strong...

I experienced my first runner's high yesterday, and I didn't even run! It came from watching my little guy look stronger than ever out on the cross country course and beating his previous best 3-mile time by a minute and 47 seconds. It was also his first race as a team captain. He brought the captain news home from practice on Thursday night, and yes, I cried. His first race of the season was last Saturday at Evanston. I stood outside the fence and cried for the whole race - his last first race of his high school career. The bright side of the covid spectator rules is that no one was around to notice. His first race ever was 3 years ago today. I'm so grateful that his sport gets to happen this fall but of course infinitely more grateful that he's here to participate. At diagnosis, he had a 10.5x2.5x2.5 cm tumor in the bottom of his left foot. The beast was also in a bunch of bones in that foot, in his spine, and in his other leg. He was using a knee scooter to get around. He has come so far, and we are so incredibly fortunate, lucky, blessed.[...]

Posted 2020-08-20T02:36:01Z

Senior year?!

Four years ago today, we got Luke's final diagnosis of stage 4 high risk alveolar rhabdomyosarcoma. Today, he started his senior year of high school. Feeling very, very grateful that he gets to start another school year no matter what that school year might look like, yet feeling very mindful of the families whose kids aren't here or aren't well enough to start this school year.[...]

Posted 2020-06-30T20:17:00Z

Catching up...

I guess I've neglected posthope since Luke's birthday on Feb 8. Thought I'd update for anyone who cares and doesn't use facebook. Posthope only allows 4 photos, so I can't share all of the pics that went along with the posts. The picture of Luke in the hospital bed is his very first chemo infusion on August 22, 2016, which should have been his first day of 8th grade. [...]

Posted 2020-02-09T02:42:25Z

Happy 17th...

Happy 17th birthday to my baby boy. This kid has been through so much, and he is, in his own words, "basically always happy." Luke, you amaze me every day with your strength, smarts, smile, positive outlook, inquisitive mind, kind heart and so much more. I know you don't think you're particularly brave or strong but you really are. I'm so blessed to be your mom and I'm beyond grateful that you get to turn 17. [...]