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Luke G - Journal

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Posted 2017-06-19T19:48:39Z

Quick update...

Brain MRI was clear, CT was clear! We’re still waiting for the foot MRI report. They like to have the same radiologist read those from one scan to the next, so they’re thinking that’s the cause of the delay. There’s no reason to believe it won’t look good since the PET showed no activity, but it will be interesting to see what’s still inside there after all of the chemo and radiation.[...]

Posted 2017-06-19T04:14:00Z

Happy Father's Day...

Happy Father’s Day to the dads who are reading this and to the wonderful dad (and husband) in our house! Love you, Paul!

Luke has been feeling great the last few days. For lunch on Thursday, he and I went to River Valley Farmer’s Table restaurant in Chicago. We’ve bought many mushrooms from River Valley at farmers markets, and a friend had recommended the restaurant as well as the River Valley Ranch farm in Wisconsin. Luke is a huge mushroom lover, so we’ll have to hit the farm sometime too. Lunch was really good. We started with the assorted pickled veggies (green beans, asparagus, beets, mushrooms, cucumber, cabbage). It was between that and the fried mushroom, fried pickle, fried cheese curd combo. No surprise that Luke picked the healthier option. Luke ordered the buckwheat and blue corn pancakes, and I had the portobello benedict.[...]

Posted 2017-06-15T03:48:46Z

Thankful...

PET scan this morning was clear! Last time, left foot still was lighting up a little, but nothing lit up today.

PET can't really evaluate head, and CT apparently is best for the lungs, so he'll still need the CT of chest and abdomen and the MRIs of the head and the foot (always MRI for primary site) on Friday. Today's PET news points toward good results on Friday too. Rhabdo is a beast, but it's so great to be able to put aside our fears for now and be thankful for the good news.[...]

Posted 2017-06-13T14:20:42Z

Feeling better (from Luke)...

Written last night but mom was sleeping when he finished writing...

Hello, it's Luke.
I just wanted to do a quick update to let everyone know how I'm doing. I'm feeling a lot better than I have been since Friday. No weak feeling, no aches, no chills or elevated temperature, more energy, and just generally feeling happier.[...]

Posted 2017-06-12T14:29:09Z

Just ok...

I've heard there was a glitch with last night's post, so I'm trying again...

Luke's fever has stayed away, but he's still not feeling great -- better, but not great. His ear feels pretty good, but he feels chilled, weak and his head has been throbbing. He's due to have his counts checked again on Wednesday, but we're thinking we might ask to have them checked tomorrow since those are symptoms of low hemoglobin. Of course, they could just be symptoms of whatever sickness or infection he is fighting. This week is scan week with no chemo, so we've been looking forward to him feeling well and being able to have some fun. I sure hope that works out! He's having a PET scan on Wednesday and 2 MRIs and a CT on Friday. I'm hoping that having Friday afternoon tests doesn't mean having to wait until Monday for results.[...]

Posted 2017-06-10T03:52:00Z

Impressive boy...

Luke has been doing pretty well since graduation.

Tuesday morning, he took Penny to the dog party and then spent some time playing at the park his 15 month old little buddy. They’re so cute together! After his vincristine at clinic, we had a nice outdoor lunch at Whole Foods and then he picked some healthy foods to cook and eat.[...]

Posted 2017-06-01T03:48:37Z

Day 282...

Luke slept from 9 last night to 9 this morning. He woke up still feeling pretty crummy, but was glad that he was able to sleep so well. After taking some meds and eating a little bit of breakfast ,including a bit of a warm homemade cinnamon sugar doughnut from a friend, it was time to head back to clinic for more chemo. "Just when I'm starting to feel better, it's time to go back for more."[...]

Posted 2017-05-31T02:31:02Z

Day 281...

After a wonderful weekend and two and a half weeks since Luke’s last chemo treatment, we spent all day in clinic today for Cyclophosphamide, Doxorubicin and Vincristine. I’m glad Luke’s counts were good to go, but starting up again and knowing how it’ll hit him always breaks my heart a little. Even after all of these months, it’s still pretty hard to believe that it’s real. That, plus facing Teddy’s last day of high school today, made for kind of a grouchy, sad morning for me.[...]