Share. Connect. Love.

Luke G - Journal

Read Entries & Updates


Posted 2020-02-01T20:55:00Z

Beat the beast...

I had planned to post the video of Luke's teacher's fabulous speech for his Titan Pride Award. I'll post it soon, but it doesn't feel right to post it right now. If you're in the Luke Strikes Back facebook group, you've probably already seen the video as well as this post. [...]

Posted 2020-01-29T17:00:23Z

Cycle challenge...

Luke won a Titan Pride Award at school this morning. It was a very special morning -- more on that in another post. 

There’s a special fundraising challenge happening now, and I could win a $10,000 donation if a lot of people donate to my Cycle for Survival ride between now and Feb 5. Any amount makes a difference - even $5! Multiple donations from the same donor (during this time frame) will only count once. Thanks in advance for your support in the fight against rare cancers.[...]

Posted 2020-01-22T17:05:00Z

17 until 17...

My little guy finished finals on Thursday and rocked his first semester of junior year! I dropped him off at O’Hare early Friday morning for his first solo flight to see his friend Jean and Uncle Mike and Patti in Florida. Paul was supposed to go with him, but he was hit with SSNHL (sudden sensorineural hearing loss) in one ear and didn’t want to mess with the timing of the injections that might help save his hearing. Called the airline to see if I could go with Luke instead - sure ma’am, that will be $387. Rats! That’s more than Paul and Luke’s flights combined, so Luke went on his own and has been having a great time. I'm so happy he got to go, but I'm really looking forward to seeing him tonight! [...]

Posted 2020-01-05T20:33:00Z

Port removal...

Luke hit another milestone on Friday with his port removal surgery. His port served him very well for 3 years, 4 months and 17 days. I like to think it helped other kids too, because he was always quick to offer to let nurses in training practice on him. The procedure went well, and he’s been pretty comfortable aside from some side effects from the anesthesia. [...]

Posted 2019-12-19T16:15:00Z

Clear scans...

Luke had his end of treatment CT (chest, abdomen and pelvis) and MRI (left foot) on Saturday. I'm very thankful and very relieved to report that they were clear! We typically get results on the next business day, but didn't hear anything until late afternoon on Tuesday. My mind was all over the place coming up with good, bad and neutral reasons for the delay. It turned out all I needed to do to get the phone call to come was to get into the shower that afternoon. [...]

Posted 2019-12-09T12:11:29Z

Last chemo...

Luke will have his last maintenance chemo infusion this afternoon. His end of treatment scans are scheduled for Saturday.

We are so very lucky, so very grateful that he's made it this far. So many others with his diagnosis haven't. So many others got just a fraction of the time that Luke has gotten. I fell down a rabbit hole reading my old posts the other day. He's come so far.[...]

Posted 2019-11-21T23:17:00Z

Cycle for Survival and more...

Aside from a stress fracture in his right tibia, Luke is doing really well. Pain in his tibia right near one of his radiation sites struck fear in my heart, but an MRI showed “just” a stress fracture and ruled out anything more sinister. He hasn't run in about 5 weeks, and it'll probably be about another 5 until he's cleared to run again.[...]

Posted 2019-10-08T14:16:56Z

Happy and Strong...

Luke’s chemo side effects have been worst 2 days after chemo lately, but he was hoping to feel well enough during his cross country meet last Wednesday to set a new personal record. After deciding at the starting line that he didn’t feel well enough to race, he was really hoping to have a good race on Saturday. He looked great when we saw him passing by on the course. I saw the clock when he crossed the finish line and knew that he had beaten his previous best time. When I caught up with him after the race, he told me he was feeling happy and strong -- words that made my heart warm and my eyes wet.[...]

Posted 2019-09-27T20:18:00Z

Cycle for Survival...

Luke’s 17th birthday is Feb 8, and (of course) we hope and pray that he’ll be doing as well then as he is today. We thought that helping to raise funds for rare cancer research would be a good way to celebrate his birthday, so we’ve created a Cycle for Survival team for Feb 9 (1-5 pm at Equinox in the Loop). Please consider joining our team![...]

Posted 2019-09-12T18:46:57Z

Scan news and more...

A year ago, I posted some cross country pictures on facebook and said I wondered if I’d ever get through a meet without crying or even if I could manage to cry just once during a meet. Luke is two meets into his cross country season and I’ve realized the answer is probably no. I’ve also decided that that’s completely fine with me. I’m just so grateful that Luke is doing as well as he is and so impressed by his strength and dedication. I'm so lucky to be able to cry these happy tears. It was also incredible to watch the GBS boy and girl who came in first place in their races. My eyes got a little wet then too. [...]