Luke had a lump in his foot which we and the doctor thought was maybe plantar fascitis or fibroma. When we went to see the doctor, I was just hoping he could get it feeling good in time for school soccer tryouts at the end of August.
The doctor ordered an ultrasound. During the test, the radiologist looked at me at said it's not plantar fibroma. It's in the muscle. It needs further testing. When I asked him if I should be worried, he said, "maybe."
Luke had an MRI last Friday night. On Saturday morning, Paul and I went to the beach in Chicago to watch Kate play volleyball. Luke texted me late morning to say that the doctor had called a couple hours earlier and sent me the number where she could be reached. When I saw that it was not her office number, I really started to worry.
"Hi Mrs. Gregory, how are you?" "Pretty worried right now." "Well, unfortunately, you have right to be." Then she started throwing out words that you hope and pray you never have to hear about your child, or anyone else's child. Sarcoma, oncologist, pediatric orthopedic oncologist, first thing Monday morning...
Luke is adorable, amazing and smart. After the ultrasound, he did all sorts of research and came up with a long list of possible causes for soft tissue lumps in the foot. He told me he had narrowed things down to two and that one was ok and the other was bad. The bad one on his list was sarcoma.
We saw the surgeon on Tuesday. He said that he and his team of radiologists were not entirely convinced that it was cancer. They all thought it showed some characteristics of sarcoma and some that didn't fit. I left there trying not to be too optimistic. He squeezed us into his surgical schedule for the next day.
We spent Wednesday at University of Chicago for an open biopsy with pathologists on hand. Pathology during the surgery confirmed malignancy. We'll be meeting with the oncologist as soon as full pathology comes back on Monday or Tuesday. It's in the small round blue cell tumor category, possibly ewing's sarcoma or rhabdomyosarcoma.
He's scheduled for port insertion and some more tests on Wednesday. We're praying and hoping it's contained to the foot. It's going be a rough road for the little guy.
Luke is taking it much better than we are so far. He's still doing research and has all kinds of intelligent questions for the doctor about treatment protocols.
Thank you for your support, prayers, love and hugs.