Share. Connect. Love.

Posted 2016-08-12T23:24:45Z

Here we go...

Luke had a lump in his foot which we and the doctor thought was maybe plantar fascitis or fibroma. When we went to see the doctor, I was just hoping he could get it feeling good in time for school soccer tryouts at the end of August.

The doctor ordered an ultrasound. During the test, the radiologist looked at me at said it's not plantar fibroma. It's in the muscle. It needs further testing. When I asked him if I should be worried, he said, "maybe."

Luke had an MRI last Friday night. On Saturday morning, Paul and I went to the beach in Chicago to watch Kate play volleyball. Luke texted me late morning to say that the doctor had called a couple hours earlier and sent me the number where she could be reached. When I saw that it was not her office number, I really started to worry. 

"Hi Mrs. Gregory, how are you?" "Pretty worried right now." "Well, unfortunately, you have right to be." Then she started throwing out words that you hope and pray you never have to hear about your child, or anyone else's child. Sarcoma, oncologist, pediatric orthopedic oncologist, first thing Monday morning...

Luke is adorable, amazing and smart. After the ultrasound, he did all sorts of research and came up with a long list of possible causes for soft tissue lumps in the foot. He told me he had narrowed things down to two and that one was ok and the other was bad. The bad one on his list was sarcoma. 

We saw the surgeon on Tuesday. He said that he and his team of radiologists were not entirely convinced that it was cancer. They all thought it showed some characteristics of sarcoma and some that didn't fit. I left there trying not to be too optimistic. He squeezed us into his surgical schedule for the next day. 

We spent Wednesday at University of Chicago for an open biopsy with pathologists on hand. Pathology during the surgery confirmed malignancy. We'll be meeting with the oncologist as soon as full pathology comes back on Monday or Tuesday. It's in the small round blue cell tumor category, possibly ewing's sarcoma or rhabdomyosarcoma. 

He's scheduled for port insertion and some more tests on Wednesday. We're praying and hoping it's contained to the foot. It's going be a rough road for the little guy. 

Luke is taking it much better than we are so far. He's still doing research and has all kinds of intelligent questions for the doctor about treatment protocols. 

Thank you for your support, prayers, love and hugs. 



Stay in the know. Sign up to receive email notifications the moment new Journal entries are posted

Comments (36)

  • Gaynor Eisenberg
    Gaynor Eisenberg

    Thank you, Amanda, for setting up this page; for your very honest words. Luke has a lot of fans out there, rooting on "the little guy":) 💛

    4 years ago · Reply
  • kim nealt
    kim nealt

    hi luke its ryan nealt. I am behind you 100% and here if you need anything!

    4 years ago · Reply
  • Kristen Allen
    Kristen Allen

    Thank you for this post my beautiful sister. Luke is such a precious, caring and compassionate guy. I am with you all for the the long haul. I love you so very much.

    4 years ago · Reply
  • Patti Alt
    Patti Alt

    So much love and prayers coming to you from MInnesota. Thank you, Amanda, for giving us the details...Luke you are an amazing and strong " little guy" please know how much we love you and are thinking about you! XO Patti and Tim

    4 years ago · Reply
  • Diane Christiansen
    Diane Christiansen

    LOVE YOU, LOVE YOU, LOVE YOU Luke! You are AMAZING! Keep strong and know that we are all behind you and thinking of you 😎

    4 years ago · Reply
  • Cindy Bond
    Cindy Bond

    Sending prayers, hugs and strength to you all. I'm a long-time cancer survivor, but still remember those frightening early days of diagnosis. Take it one day at a time, one step at time. You are in good hands with some of the best care in world and have a community of support behind you.

    4 years ago · Reply
  • Jenny Burrowes
    Jenny Burrowes

    So glad you set this up to keep us posted. Thinking and praying for you this next week and are here to help any way we can.

    4 years ago · Reply
  • Allison Arnold
    Allison Arnold

    Luke - we're all behind you! Your inquisitive nature and strong spirit will serve you well on this journey. Sending you and your family love and prayers!

    4 years ago · Reply
  • Tera White
    Tera White

    Amanda, Please give Luke a big HUG! Smart boy researching information and asking intelligent questions. Impressed. We are praying in MN!

    4 years ago · Reply
  • Val Spingola
    Val Spingola

    Dear Amanda and all, Thank you for generously setting up this website to share your experience with all of us. The prayer warriors of Glenview are on duty full time keeping Luke and all of you in God's care as you go through this incredibly trying time. Sending all the positive energy you need to keep you going in the coming days. God bless.

    4 years ago · Reply
  • Colette

    We are all concerned about Luke. Luke is a wonderful child and we are here to help in any way.

    4 years ago · Reply
  • Mary Garvey
    Mary Garvey

    Thank you for setting up this site. So many people are thinking of Luke and your family. We are praying for you and are here to help in any way. Luke, you are an amazing guy. The Garveys

    4 years ago · Reply
  • Amy L Zimmermann
    Amy L Zimmermann

    The ZImmermanns are thinking of you. We are also buoyed by Luke's intelligence, curiosity, and inner spirit as you describe it so beautifully, Amanda. You all will remain in our prayers.

    4 years ago · Reply
  • Connie and Christie Chrones
    Connie and Christie Chrones

    Luke, we sat next to you at this year's piano recital. You were awesome! We hope to hear you are feeling better soon and can't wait to hear you play at next year's recital! With all our best wishes and prayers, Connie and Christie Chrones

    4 years ago · Reply
  • Karen Knoll
    Karen Knoll

    Luke, Amanda, Paul and all are in our thoughts and prayers. Sending lots of love.

    4 years ago · Reply
  • Allison mathias
    Allison mathias

    Luke, my girls are students of Ms Lana and she passed on your story to us for an outreach of prayers and support. You sound like a strong and courageous guy. My dad is a cancer survivor and is a testimony to God's miracles. We'll be praying for you.

    4 years ago · Reply
  • Karen O'Brien
    Karen O'Brien

    The o'briens want you to know that we are praying for our favorite little vegan and will continue to send only positive thoughts your way. We love you all and are here for you in any way you need. ❤️🙏💐. God bless you all.

    4 years ago · Reply
  • Lilliana Tychalski
    Lilliana Tychalski

    Dear Luke, My family and I are praying for you. You are such an awesome, sweet and courageous person. I loved watching you play the piano at my moms piano concerts and hearing great and fun stories about your piano lessons from my mom. I wish to hear you play again soon and to hear more of those great stories again. Stay strong and we wish you to get well soon. Love, Lilliana, Lana, Brand and Maria

    4 years ago · Reply
  • Lana Gangware
    Lana Gangware

    My dearest Luke I have always appreciated your hug so much whenever you have a piano lesson. Please accept a remote hug from me with all my hope that you will come through this difficult time as I know you will. You are incredibly special and strong and I know you will get through this. Please accept all my prayers for you and your family. Ms. Lana Tychalski Gangware

    4 years ago · Reply
  • Ignelzi Family
    Ignelzi Family

    To the entire Gregory Family...We are just learning of your news and want you to know that you are in our thoughts and prayers Luke! You are all in our prayers. You are such a positive boy and you will fight and win! The entire Ignelzi Family

    4 years ago · Reply
  • Christine Foley
    Christine Foley

    Gregory Family, Ross and my thoughts and prayers are with you all. We are rooting for Luke! Christine and Ross Foley

    4 years ago · Reply
  • Kris Iida
    Kris Iida

    The Iida family also sends our prayers and thoughts your way. We know what a strong boy Luke is and we will be with you through this!!

    4 years ago · Reply
  • Regina ayala
    Regina ayala

    Hugs to you all! We are praying for you all, especially Luke! We love yall!

    4 years ago · Reply
  • Beth Boland
    Beth Boland

    To Luke and the Gregory family - the Bolands are rooting for you! You are amazing and so strong.

    4 years ago · Reply
  • Meredith McKinley
    Meredith McKinley

    Luke, Amanda, Paul and family ~ this is tough news. Really tough. But, Luke, it sounds like you are a pretty tough guy, already making a list of questions for the doctor and trying to understand this diagnosis. Please know that you will be surrounded by lots of love and support and of course, prayers. I have seen this special town called to action before and Glenview is truly an amazing place. Also, in September, our niece is marrying a wonderful man who was given a similar diagnosis when he was 13. He too is an amazing person and now a strong survivor. Sending lots of love, hope and support. McKinley Family

    4 years ago · Reply
  • Ashley Hogue
    Ashley Hogue

    Dear Luke and family, Everyone who knows you at Andreas Hogue Salon is thinking of you and praying for a speedy recovery. You have an entire village of people rooting for you. Stay strong. ❤️

    4 years ago · Reply
  • Colleen Lueder
    Colleen Lueder

    Dear Luke, you are an amazing young man, and I'm keeping you and your family in my thoughts and prayers. Love, Mrs. Lueder

    4 years ago · Reply
  • Laura Cushnie
    Laura Cushnie

    We send thoughts and many prayers for Luke and all the Gregory s as this journey begins. May the love of your family, friends and this wonderful community keep you strong . We are here for you, Luke! The Cushnie Family

    4 years ago · Reply
  • Julie Loeber
    Julie Loeber

    Hi Luke it is Alex Loeber! Thinking about you everyday, prayers after prayers after prayers for health. I know you can do it. Get well soon! Alex

    4 years ago · Reply
  • Pam Hay
    Pam Hay

    Luke you're amazingly determined, strong and resourceful. Not to mention you have an uplifting lightheartedness that we've always admired. We're here thinking about you and your family and hope that the doctors find a recovery plan for you. In the meantime we'll be saying a special daily prayer for you and everyone in your family. Lots of love and hope from the Hay Family

    4 years ago · Reply
  • Julie Reid
    Julie Reid

    Luke, I have only meet you a handful of times, but I think you are just wonderful. The dish you made at a Christmas party was so amazing, I remember thinking that you are an extraordinary, talented young man. We are sending you healing thoughts and prayers. Know that there are so many people (many who you don't even know) who are thinking about you, cheering for you and praying for you. Stay strong! The Reid Family

    4 years ago · Reply
  • Jeanne DeLasCasas
    Jeanne DeLasCasas

    Amanda, Chuck and I are praying for Luke and all of your family. We were so sad to hear all of you have to face this. Luke sounds like quite a young man. (((Hugs))). Jeanne & Chuck DeLasCasas

    4 years ago · Reply
  • Jane Crouth
    Jane Crouth

    To Luke and the whole Gregory Family, We are so sorry to just hear of your news. You all will be in our thoughts and prayers...we are rooting for you,Luke. The Crouth Family

    4 years ago · Reply
  • Anne Case
    Anne Case

    Luke, your dad and I were friends in high school (he helped me a lot with my Chemistry class; he's a pretty smart guy!) I will be praying for you and your family. I work in a plastic surgery clinic in Milwaukee that works very closely with the oncologists at our hospital and medical school. I, too, am always looking up new things that I've never seen or heard of. It's a very smart thing to do--the more you know the less scary things can be. So you must be super-smart like your dad! I want you and your family to know that you have a friend in Wisconsin who is pulling for you! Sincerely, Anne Case

    4 years ago · Reply
  • Susan McClanahan
    Susan McClanahan

    Our thoughts and prayers are with you all! We love Teddy, and Luke seems like such an amazing kid. Sending lots of love and hugs!!!

    4 years ago · Reply
  • Chris Lyngso
    Chris Lyngso

    Hi Luke and all the Gregory's. I'm praying for strong days and smiles and smart doctors full of hopeful news. Luke your smile is my favorite! Keep wearing it!

    4 years ago · Reply