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Luke G - Journal

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Posted 2019-08-23T15:44:00Z

Day 1097 (I think)...

3 years ago yesterday, Teddy started his senior year of high school, Kate started her sophomore year, Luke’s peers started 8th grade, and Luke started chemo for stage 4 high risk alveolar rhabdomyosarcoma. He popped in for about 8 hours of 8th grade total. Yesterday, Luke started his junior year of high school. and Teddy and Kate are both off at college. My emotions are all over the place. Making it this far without a relapse is big deal. I'm so very grateful that Luke has done it but it's impossible to understand why so many others haven't. [...]

Posted 2019-07-22T15:27:18Z

He did it!

It's hard to describe the emotions that come with watching this boy run and seeing him cross the finish line. He met his goal and felt great doing it! Luke - "It was so much fun. I think I was smiling the whole time." When I took the picture of him running, that's just how he looked when he came into view. He didn't know I was there yet. I don't look anything like that when I run! [...]

Posted 2019-07-14T15:35:38Z

He's home...

Luke is home, and he says he wants to go back to Camp One Step next year!

He went running before breakfast 6 of the 7 mornings. He didn't have to run loops around and around the camp because he found counselors and medical staff who were willing to go with him ❤️. His food situation worked out well. He ate all of the meals that we packed and supplemented with camp fruit, salad bar and cooked veggies. He didn't feel too old -- he got along with kids his age, counselors and younger kids.[...]

Posted 2019-07-07T02:56:40Z

Off to camp...

We dropped our little guy off at Camp One Step this afternoon 😢❤️. All of the campers are pediatric cancer patients, from kids currently in treatment to long term survivors. It's well staffed with volunteer nurses and doctors, and one of Luke's doctors will even be there for the first few days. I know he's in good hands but ugh.[...]

Posted 2019-06-12T20:25:56Z

School's out...

It’s so hard to believe that Luke has finished up sophomore year! He started chemo on the day that his peers’ started 8th grade. At that point, making it to high school was uncertain at best, and now he’s not only finished 10th grade, but he’s finished it strong both academically and physically. His grades were great, and on his initiative, he’ll be taking a more rigorous course load next year. His counselor and I are a little concerned about the changes, but we aren’t going to hold the boy back.[...]

Posted 2019-05-26T15:00:09Z

Scan day...

MRI of foot and CT of chest, abdomen and pelvis yesterday morning. Last MRI was 3 months ago, last CT was 5. I'm glad they're synced back up, but 5 months is a long time without a peek inside his upper body. Guessing we'll get results at his chemo appointment on Tuesday.[...]