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Luke G - Journal

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Posted 2017-09-25T03:07:00Z

Doing well...

Aside from having to leave school early on Wednesday because of a bloody nose which earned him a platelet transfusion, Luke has been doing really well. We’ve been fortunate to be able to have lots of pool time on these hot fall days.[...]

Posted 2017-09-19T22:39:06Z

Day 394...

Luke wasn’t feeling great in the days after Thursday's chemo, but he powered through anyway. He was nauseous and tired, but he ate better than he did the other three times he had these drugs. He said he wasn’t feeling like eating, but that he was giving it a shot. I don’t think eating really helped him feel any better, but it didn’t seem to make him feel any worse either. It must be better for his strength and weight though![...]

Posted 2017-09-15T15:14:00Z

Day 390...

Chemo yesterday, school today. My sweet boy continues to surprise, amaze and inspire me.

Luke’s counts were where they needed to be yesterday, so chemo was a go. He had breakfast before we left for clinic and a little apple before chemo started, but hasn’t eaten anything since. As soon as we got home from clinic last night around 5:30, Luke wanted to get Penny out. He was pretty drugged up and really in no shape for a walk, so we headed out by car. We stopped to chat with one of Luke’s friends (a wonderful lady who Penny especially loves to visit for treats) and then continued on to meet another friend with her dog at the park. Luke gets a little irritated when I hover or try to hold on to him. He doesn’t realize how wobbly (as he likes to call it) he really is. I know that the people we met up with last night will let him know that he does need a little help sometimes.[...]

Posted 2017-09-14T02:47:00Z

Day 388...

Luke did run in the cross country race yesterday! He texted me shortly after the end of the school day to say that he was probably not going to run because his stomach was bothering him. He got on the team bus for the away meet though, and when Paul and I got there, he was warming up. The boys finished their warm-up run, stretched a little, huddled up near the starting line, took their places at the line and then they were off! Luke wasn't the fastest guy, but he wasn't the slowest guy either. He ran the whole race at a pace that he knew would work for him, and true to form, he had a great time. People cheered for every runner that went by, so Luke didn't feel like people were cheering for him just to be nice.[...]

Posted 2017-09-12T03:29:41Z

Day 386...

Luke lost the election on Friday, but he had fun giving his speech and is very happy that he ran. I was much sadder than he was and much sadder than I expected to be about the outcome. I'm over the sadness now and am just so proud of him for giving it a shot.[...]

Posted 2017-09-08T04:08:54Z

Delayed again...

Luke's ANC was 150 this morning. It needed to be at least 750 for chemo, so he got another reprieve. We'll try again next Thursday. The doctor said to start his Neupogen injections again to help give his bone marrow a boost. He typically has to give himself an injection daily for about 2 weeks after chemo until his counts recover. This is the first time we've had to resume them after stopping.[...]

Posted 2017-09-06T03:22:00Z

Day 380...

Luke saw the GBS girls volleyball team get a nice win on Thursday night.

He skipped cross country practice on Thursday and Friday because of the low hemoglobin symptoms -fatigue, weakness, shortness of breath, fast heartbeat. Hmm, that's what I feel when I run. [...]