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Malia's Big Journey

This is Malia Garcia, a 3 year old little girl who has been diagnosed with Lhermitte-Duclose Disease, a Dysplastic Gangliocytoma cerebellar Brain Tumor. This Tumor she has is Inoperable, very rare, and when found is usually in an adult in their 3rd stage of life. As my little girl is only in her 1st stage of life everyone is at a loss on how, why, and what her future holds. This site is about our journey on finding a way to help her, spread awareness, and hopefully find a cure or a way to prolong her life!!!

This page is about my three year old daughter, Malia, and her journey in fighting to survive a Dysplastic Gangliocytoma Cerebellar Brain Tumor, better known as "Lhermitte Duclose Disease." Never heard of this? Yeah, we didn't either until the day that she was diagnosed with it. This type of tumor that Malia has is rare, and even though it may be a slow growing a low grade tumor, it is still un-removable, and untreatable in most ways. I have started this blog to share with all of our friends, family, as an update, and also for parents who are dealing with a similar situation as ours, be a support if needed, and let other parents know that "You are not alone!"
We had noticed that Malia's eyesight was getting bad at a rapid rate, and had gotten her eyes checked by a pediatric optomologist, who had see something in her eyes to send her to get an MRI. And that is when it all began. From the moment we heard the most dreaded, and scary words of our life "Sorry, but your child has a brain tumor" our lives have been turned upside-down in the most dramatic way. Only a few days after the horrible news, she went into surgery for the first time to try and remove what was thought to be a different type of tumor, the type that would have given her much better odds then what she has right now. In the middle of her surgery, her neurosurgeon had came out to let us know that the tumor seemed to be of one that he had no recognition of, and needed to close her back up and send samples to John Hopkins to find what they we were dealing with. So between the time of waiting for the results, things began to go down hill for Malia, and she started to build fluid on the brain causing her the worst pain I had ever see anyone bare, and almost took her from us! She had a drain tube in, and then a week after that a permanent shunt placed in her head. After her third surgery and a third opinion, Washington state University finally figured out what kind of tumor she has. She had spent close to twenty days in the hospital, and in and out of PICU, before we were able to come home, and even still everyday is struggle. We are fortunate that she is up in good spirits with little side effects so far, and is able to play with her brother's and sister. We have learned from Malia that everyday, and every moment is a true gift that we will never take for granted, and even though she is just three years old, she is wise beyond her years, and has the most amazing spirit and love. Our journey in finding a way to cure her is one that has just begun, and one that we will never stop fighting...