If you recognize the lyrics in the title of this post, then you know the artist is House Of Pain, and that pretty much describes my month of June.
Looking at my last post from June 4, it sounds like I was doing alright prior to the adrenal radiation. Something that I did not include in that last post was that on Thursday, June 7, I started having some significant pain in my left hip. This was a new site, I had not had pain in that location previously. By the next day, the pain was pretty bad and seriously affecting my ability to walk. Throughout the following week, the pain spread throughout my torso. I had shooting pains anytime I tried to step up a stair or two, get in the car, sit up from a laying down position, anything that engaged my core. I also began having trouble with shortness of breath, I just couldn't catch my breath or inhale deeply. As of today, the pain has centralized on my right side where the radiation occurred. Feels like I got sucker punched in the kidney. The worst part of my day is sitting up from bed first thing in the morning. I'm sure my neighbors hear me wincing as I try to get out of bed. It's that bad. And my left hip continues to be another site of pain, causing me to walk like a sidewinder. I'm sort of a mess, don't you think?! Well, I'm trying to focus on the positives: at least I'm still walking.
I had a chest CT last week which Dr. Lao had ordered. I will see Dr. Lao on 6/27 to go over the results but I read the report online and it's not great. More on that later.
So, I have to cut this entry short because my laptop is acting up. Hoping to get an immunotherapy infusion on 6/27 but I am still on steroids so I'm not sure it will happen. I am going to BEG Dr. Lao to do the infusion. I haven't had an infusion since March and that basically makes me feel like I am walking around with end-stage cancer and not treating it at all. I know it's because of all the other problems I have had, but I need to get my immunotherapy on!