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Posted 2012-02-26T16:40:16Z

THE FLAMES !!!!!!!!!!!!!!!!!!!!!!!!!!!!!

   HELLO EVERYONE! HOPE THIS FINDS EVERYONE AS WELL AS YOU CAN BE TODAY  !!!  " SUN"  FEB., 26, 2012

   WELL, AS YOU MAY HAVE NOTICED, I WAS RUSHUNG THE DAYS... YESTERDAY WAS OBVIOUSLY... "SAT" AND TODAY IS "SUN" .... GLAD I FINALLY GOT OVER THAT BRAIN FOG!!!!! LOL!! 

   WE NOW HAVE A PHOTO FOR OUR PAGE, HOPE YOU LIKE... OPINIONS ALWAYS WELCOMED -----THEY ARE ONLY OPINIONS, THEY'LL NEVER HURT ME,ONLY HELP, THX. 

   I CHOSE IT BECAUSE IT IS EXACLTLY HOW I FEEL ALMOST  'A L L' THE TIME!!!! FEELING LIKE I AM WALKING IN FLAMES AND BARELY HAVE THE STRENGTH TO LIFT MY HAND EVEN TO ATTEMPT TO BLOW THEM AWAY--- KNOWING THAT WILL AND COULD NOT WORK!!! I NEED TO CONSTANTLY EXTINGIUSH THE FLAMES!!! WATER CAN BE A RELIEF ....... IF ONLY I WAS A FISH!!  :-)    

   IT'S REALLY HARD TO GET A BREATH SURROUNDED BY THE FLAMES, WOULDN'T YOU AGREE? THEN, IF YOU GET A BREAK FROM THE FLAMES, YOU'RE NOW SUFFERING FROM THE PAIN FROM THE BURNS!!!  ============EXPLAIN THAT TO SOMEONE========== EXCRUCIATING!!!!!!!!!!!   WHICH IS WORSE???? IT IS VERY DIFFICULT TO DETERMINE. MYSELF, I THINK THE BURNING IS BECAUSE WHEN I AM IN THE FLAMES.... I AM LYING THERE SUFFEREING--- BARELY ABLE TO SPEAK, MOVE OR EVEN BREATH. SADLY. NO ONE EVEN KNOWS.... I AM ALONE, QUIET, MOTIONLESS, NOT MAKING A SOUND ....... CAN'T....... THE SIMPLEST THING AS MOVING MY EYEBALLS... USUNBEARABLE! USING THE MUSCLES TO BREATHE, THE SAME UNBEARABLE!!  AFTER THE FLAMES HAVE DIED DOWN===== NOW THE BURNS..... PLEASE DON'T TOUCH ME!!! THE SENSATION IF A FEATHER TOUCHING ME..... AGAIN======EXCRUCIATING!!!! ( SOUNDS LIKE MY FAVORITE WORD, "EXCRUCIATING" MAYBE ONE OF MY LEAST FAVORITE!). THAT'S WHERE PEOPLE WITH FIBRO CAME UP WITH THE TERM, (((((((( GENTLE HUGS))))))!! OF COURSE WE LOVE HUGS JUST LIKE EVERYONE ELSE. IN FACT, I FIND THEM TO BE HELPFUL IN RELIEVING THE PAIN!! HUMAN TOUCH IS EXTRTEMLY POWERFUL!! JUST PLEASE..... BE GENTLE, THANK YOU!!! :-)    I TRY TO EXPLAIN THIS SYMPTOM TO PEOPLE AS : IMAGINE YOU HAVE A SEVERE SUNBURN FROM HEAD TO TOE=== THAT'S IT=== VERY PAINFUL, RIGHT?

   WELL, I HOPE SOME CAN RELATE OR OTHERS CAN UNDERSTAND A LITTLE MORE OF WHAT THEIR FRIENDS OR LOVED ONES MAY BE EXPERIENCING WITH THIS : FI-BRO-MY-AL-GI-A. LOVE TO HEAR FROM YOU>>>>>>> DID I MISS ANYTHING?  'TIL NEXT TIME~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ A FIGHTER!! 

 

 

   

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