Time for an update! Day + 64 post-STC.
This blog post should have been written two days ago, on February 6, 2018.[...]
Today Linton's a third of the way through the immediate 100-day recovery period after his SCT.
He's been home for 17 days and is steadily gaining strength. [...]
Day + 15 (Thursday, Dec 21, 2017)
Before Linton could be discharged, he needed to have the Hickman tri-fusion central venous line removed from his chest. It had served him well during his almost three-week hospital stay: for the administration of the two high-dose Melphalan chemotherapies, for the stem cell transplant, for the three days of IV saline, for the multiple platelets transfusion he’d needed, and for the daily blood draws.[...]
Hi all, it’s Simone filling in for my mom again. This time she is not sleeping, but cleaning the shower in preparation for Linton’s return. We’re going to have to keep everything squeaky clean once he gets back.[...]
Hi everyone, it’s Simone writing today’s post. My mom is totally knackered after many long days and just wanted an early night. She and our cat Eartha (aliases: the Slab, the Gat) are snuggled up and fast asleep as I type this.[...]
The tartan theme continues (!) but there was a change in the weather in room 742 today. After yesterday’s transfusion, Linton’s platelet levels rose from 10 to 16, taking him into safer territory. Therefore, he didn’t need a platelet transfusion today.[...]
On Day +9 Linton’s platelet count dropped to its lowest level yet: 9 (x10^9/L). Once they reach 10, a platelet transfusion is necessary as the risk of spontaneous bleeding is too high.[...]
Linton’s white blood cell (WBC) count hit rock-bottom today – indicating the nadir has been reached.[...]
The Neupogen shot that Linton got yesterday evening ended up causing him severe pain in his ribs and back during the night. He spent a good part of the night tossing and turning, and pacing up and down the room, trying to get some relief. This bone pain is a well-known side effect of Neupogen – it results from the bone marrow being over-stimulated and trying to produce new blood cells.[...]
It’s exactly one week since Linton's admission to the Stem Cell Transplant Unit!
Today his white blood cell (WBC) counts have fallen well below normal for the first time, and he can certainly feel the effects. He feels exhausted and washed out.[...]