Four weeks of radiation + chemo are done, with only two weeks to go. The finish line for phase one of treatment is in sight – three cheers for that.
Here’s what I’ve been going through for the radiation, which I get 5 days a week. The medical team puts a custom-molded plastic helmet (see photo) over my head and snaps it (and me) in place on a stretcher, and then a linear accelerator slowly rotates around my head for 5 minutes or so, sending radiation is a pre-set pattern at the tumor. John, with his usual whimsy, dubbed the machine Sparky. Even bad humor is appreciated these days. Each day I have a silent chat with Sparky and ask for highly effective cancer cell zapping. No harm to ask!
The daily chemo pills (Temodar) are nasty. But, Glioblastoma is nasty and you fight toxic with toxic. I’m fortunate the side effects have not been brutal. I’m not nauseous and I can sleep. It was distressing to lose a few chunks of hair last week, but the patches aren’t huge and mostly are under other hair. I won’t have to shave my head – not yet, anyway.
Another milestone last week was the ok to have a glass of wine with dinner. I’ve been vino-free since the seizures August 12, and it’s nice to reintroduce this social luxury. My neuro-radiation specialist likened this tumor to a small terrorist inside my head. Fight it hard and smart, but the rascal doesn’t get to rule every part of my life. I’m on-board with that.
I’ve spent lots of time with family and friends the past 4 weeks. The sound of a clock ticking loudly accompanies GBM, and I’m reminded that the people I love are truly the center of my universe. I am deeply grateful for that bounty. Thank you again, my friends, for your love, prayers and support. Those prayers, and each of you, mean the world to me.
P.S. On a sad note, John and I had to put our dear old dog Addie to sleep a couple weeks after my surgery. She had stopped drinking, eating and would not move. At 14 years old, her time had come. She’s still my fur-ever friend and the best dog ever. The day before we put her down, she was sleeping with her soft muzzle resting on my bare foot. I said to myself, remember this feeling…